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Living with Multiple Myeloma in Hyderabad , India . Random musings .

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Metabolic Profile C – Test/Reports

It’s been three years since I started consulting Dr Nithin, Ayurveda and began taking Ayurvedic Medication for Multiple Myeloma.

He recently advised me to get a test named ‘Metabolic Profile C’ done.

This was the first time I was hearing about this test. 

Checked on the Internet and learnt that it is a package of 137 tests. Here is a link.

I glanced through the information and guessed/concluded that it is a comprehensive test to check the levels of all the various Minerals and Vitamins in the body.

This test is offered only at Thyrocare diagnostic centers in India.

At the lab , three fasting blood samples were collected and it took 2 days for the reports to be ready. I was surprised to see the bunch of printouts . The Report had 24 pages in all 🙂

Started turning the pages one by one to find status of parameters like Magnesium, copper, Iron, Zinc, Vitamin K , Vitamin A , lipid profile, Glucose , B Vitamins , Vitamin D etc etc .

Almost all the parameters were in the Normal range except for B12 and Total Cholesterol which were just a wee bit more than the normal range. ESR was high as usual.

Sent the scanned copies of the reports by mail to Dr Nithin .  He said that almost all the parameters are normal. 

He also said there is no trace of any cancer. Yayyy !!!

But what are the parameters in this test that help in detecting Cancer ??!

When I checked the above link once again , I also learnt that the test reveals the levels of Amino acids in the body. There are around 20 Amino acids in all . The levels of Amino acids indicates the Metabolism in the body. It is the Mitochondria inside the cells which produce several of these Amino acids . The Protein in our diet is broken down into Amino acids in the gut . Mitochondria is one of the important Organelles inside the Cell and it is the Powerhouse of the cell. Only healthy Mitochondria can produce sufficient Amino acids to maintain a Healthy body. Amino acids are required for each and every function in the body.

Unhealthy Mitochondria are unable to produce sufficient quantities of Amino acids and also release lots of metabolic waste which is the initial stage of Cancer. 

Is there a way to  improve the function of Mitochondria ?

Yes, by Exercise, Intermittent Fasting , exposure to the Sun , reducing consumption of Sugar etc.

Here is what Dr Nithin has to say about the ‘Metabolic Profile test’ , in his own words –

Metabolomics is the latest in understanding the process of Cancer.

Metabolic profile is for detecting the defect in Metabolism by Mitochondria, a powerhouse of the cell , which becomes dysfunctional and causes fermentation on glucose instead of oxidation, causes release of lots of metabolic waste , which is the most initial step in cancer.

If these levels are normal , it indicates good functioning of Mitochondria. Which can be further inferred that Cancer process is being stopped or arrested. “

That was a revelation !!

As per my report , all the Amino acids are within the normal range.

My B12 level is a wee bit on the higher side. I was taking one capsule of Methylcobalamin (a form of B12) every day. Was advised to stop for 6 months.

I will be continuing to take Curcumin, Ashwagandha etc.





Celebrated the good news by going to a restaurant and ordered Molten Chocolate cake 🙂 . I usually  avoid eating cakes as the main ingredient is all purpose flour (Maida) .



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Recalling Memories of Dec 2011


It has been 6 years since I underwent Stem Cell Transplant for Multiple Myeloma. It was in Dec 2011 when I was ushered into an isolated , sterilised , spic and span room where I would spend 15 days all alone.

A room where I would be reborn 🙂 , where my healthy Stem cells would be put back into my bloodstream which in turn would produce fresh and pure blood cells.

I spent Christmas (2011) and the New year(2012) in this room . I had the company of Doctors , Nurses and housekeeping staff who were like family and I would look forward to meet them and chat with them.

Felt too weak to sit by the huge glass window which overlooked the front porch of the building . I had to take the help of a nurse to take a short walk around the room.

Spent my waking hours watching my favorite shows on TV. I kept switching between Cooking , Travel and Religious channels .

Each morning my blood samples were taken and I eagerly looked forward to the reports which would arrive in a couple of hours . The counts of various blood cells would reveal how well my Stem cells were functioning.

A lot of yummy food would be served but it was difficult for me to swallow as my digestive system went on a strike 🙂

I patiently waited for each day to pass. My doctor promised me that he will send me home for Sankranti (a Hindu harvest festival which is celebrated around Mid of January every year ).

Since then , each year around December/Jan , I become nostalgic .

I made a lot of resolutions during those days 🙂 , all that I would do and not do. I have been quite successful with most of the do’s and don’ts 🙂

Feeling very blessed and grateful as another memorable year is passing.




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Use of Turmeric / Curcumin in Indian Customs and Traditions , Health and Healing , Beauty treatments

Turmeric Vs Curcumin :

Turmeric is a root/rhizome, a golden-colored spice that belongs to the ginger family . Widely used in India for different purposes. The words Turmeric and Curcumin are usually used interchangeably but Curcumin is an extract from Turmeric root, which gives the yellow color to the spice and has several healing properties. Different methods are used to extract Curcumin from Turmeric. Turmeric contains various ”curcuminoids” and Curcumin is one of them. Curcumin is a whole Pharmacy in itself and is used to treat several health conditions. Extensive research is being carried out on Curcumin in the western world for its healing properties..


This spice has always been revered in India since thousands of years. But ,it is very unfortunate that the healing properties are unknown to majority of the current generation and the knowledge is slowly getting lost. Hopefully the research that is being carried out in the western world will bring to light the potency of Turmeric and thereby heal the world.

Here is an attempt to describe how Turmeric has been in use since centuries in Indian Customs and traditions.

Hindu Customs and Traditions :


A few drops of water is added to Turmeric powder which is then shaped into a small solid cone . During Hindu festivals this form is worshiped as ”Lord Ganesha” , the remover of all obstacles. It is a fact that none of us  wish to face any obstacles in whatever activity we do/take up. This is a method of reinforcing our will power and also to invoke the blessings of the almighty.


During Fridays, festivals and other auspicious events, Turmeric paste is applied on the threshold of the main entry door of the house and all other doors that lead outside the house. This ensures that insects and ants do not enter the house. Now a days this is done away with by using paints. Beautiful designs of flowers and leaves are drawn using colourful paints.

A married woman gives Turmeric root/powder along with ‘kumkum’ to other married women  (neighbors, relatives , friends etc), during festivals after inviting them into their homes. This is done as a blessing and good wishes for the long life of the woman and her husband .

Turmeric during weddings :


Wedding preparations start with the making of Turmeric powder at home. An auspicious day and time is chosen for the event. A few women (relatives, friends neighbors) gather and use a mortar and thistle to crush the dry Turmeric root and symbolically prepare Turmeric powder.

A lot of Turmeric powder is used during Hindu weddings. There are a minimum of  5 rituals, spread over a few days , which require the use of Turmeric powder.

Haldi Ceremony is a very important part of a Hindu wedding. The bride and groom are smeared with a paste made by mixing Turmeric powder , sandalwood paste and rose-water, in their respective homes , couple of days before the wedding. Relatives friends and neighbors gather and make it a fun event.The Bride and Groom get a beautiful glow on their skin 🙂 . . This is repeated three times on three consecutive days. A natural beauty treatment instead of going to a beauty parlour or a Spa.

The bride and groom wear clothes that have been dipped in water that is mixed with turmeric powder . The cloth then gets dyed with a light yellow color.

Turmeric powder is mixed with rice which is then called ‘Akshintalu / Akshatalu ‘. These Akshintalu are used during puja and also used to bless others by sprinkling a little on top of the head of the one taking blessings who bows down and touches the elders feet.

In South Indian weddings , this rice is taken with cupped  hands by the bride and groom and  is poured on top of each others head during the wedding ceremony.


A long thread is smeared with Turmeric paste and a Turmeric root is tied at the center of this thread. During the wedding ceremony the groom ties this thread around the neck of the bride with three knots.



Health and Healing :


An Indian kitchen is incomplete without Turmeric powder in its spice box. Almost all Indian recipes contain Turmeric powder.Thus ensuring that turmeric is taken everyday in our diet. Turmeric also enhances the color of the dish. The anti bacterial properties of turmeric prevents food from decaying quickly.


Turmeric powder is Mixed in milk and consumed in order to treat coughs and colds.

Turmeric is supposed to be good for the Liver and digestion.

Turmeric is applied to bruises as it is an antiseptic.

Small balls are made with wet Turmeric powder. A few of these are consumed in order to reduce menstrual cramps .

Turmeric is a blood thinner and reduces cholesterol. Helps in controlling Blood Pressure.

It is anti-inflammatory. Inflammation is the major reason for most of the chronic diseases including Diabetes , Cardiovascular diseases , Arthritis , Cancer etc.

Curcumin induces apoptosis in tumours . It induces cell death in cancerous cells thereby stopping the multiplication of these cells.  A lot of research is being carried out and there is sufficient proof that this property of Curcumin can treat almost all types of Cancers.

Beauty Treatments :

Many South Indian women apply turmeric paste to their feet every Friday and during festivals and other religious events. Being an antiseptic it protects the feet from infections and cracked feet.

Turmeric paste mixed with other items like milk, chickpea flour etc is applied as a face mask to get rid of acne, pimples and other skin problems . It is also an excellent exfoliant and gives a glow to the skin.


No wonder Turmeric has always been given a lot of importance in Hindu customs, traditions and rituals since a long time and is treated with piety and respect.

It is highly recommended that everyone include more Turmeric in their diet. It is also advised to prepare your own Turmeric powder instead of using the store-bought powder which is usually adulterated.

I have been using Curcumin every day since Jan 2014 , to fight Multiple Myeloma. Currently not using any other drug. Hope to manage my condition as long as I can.

~Yad Bhaavam Tad Bhavathi  : You become what you think ~

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What to expect during and after a BMT (Bone Marrow Transplant) or Stem Cell Transplant

I get to talk/chat with caregivers/patients with Multiple Myeloma . Each one of them has a different set of queries.

One such patient, who was advised to go for a BMT by my Oncologist , was preparing to get admitted to the hospital and called me a few days ago.

I  first met him when he was just diagnosed and wanted to know about my condition in general.He was not ready to go for the BMT then. My Oncologist had suggested he speak to me and gave him my phone number.

The second time , he called me and he was more specific and wanted to know what to expect during the BMT ,while he is in the sterile ward .During the BMT process the patient is in a sterile and isolated room for approximately 15 days. This is a must as the patients immunity would be at the lowest and hence prone to infections.

He was worried whether there would be unbearable pains in the body, severe burning sensation in the stomach , whether he would be able to walk and other details.

This post is specifically to provide details as to what actually happens during the two weeks in the sterile room and precautions to be taken after the patient is discharged.

After the Stem cells of the patient are harvested from the patient (for an autologous transplant), the patient is moved to the sterile room. A high dose of chemo is administered to the patient via the ‘Chemo port’. All parameters are monitored every morning, which includes blood tests. For a few days the patient feels very normal and is given normal food. Around 4th day they start experiencing tingling sensations in the legs. The feet feel heavy , numb and restless. These are the symptoms of ‘Neuropathy’ (The fine nerve endings in body are affected, a side effect of chemo ). The mouth begins to feel dry and there is a mild sore feeling in the mouth. The patient is unable to eat spicy food. The digestive system gets affected as the lining in the esophagus  ,stomach and intestines become sore due to the chemo dose. Medications are given to soothe the digestive system.

During the first week , the patient’s blood counts go on  reducing , the WBC count becomes zero. Meanwhile the patient is given platelets and blood transfusions as the body is not yet in a position to generate its own cells. The patients own harvested stem cells ( our very own fresh and healthy new babies ) are given back to the patient via the port. These cells reach the Bone marrow and divide to form all the various other blood cells like Red blood cells, White Blood cells,  Platelets , Neutrophills etc .

During this period the patient is unable to eat any solid food. Food is given in the form of Fluids. A dietitian visits almost every day and based on the patients condition/feedback the diet is changed.

Around the 7th or 8th day the patient’s own WBC count begins to increase. This is an indication that the Stem cells have started doing their job.By the end of the second week , the counts of all other blood cells like platelets, RBC , Neutrophils etc increase and reach almost normal levels.

The patient will begin to experience loose watery stools, nausea and vomiting.

Not to worry much.Go with the flow :))

There were times when I would be frustrated and irritated with the nurses for no fault of theirs. When they took longer time to retrieve by blood samples or did not attend to me immediately when I give a buzz etc . At one point the Air Conditioning was faulty and I created a big scene and informed that I wanted to meet the Hospital Admin staff. But they kept calm and handled me well :))

Patient feels weak and may not be able to move around the room without the help of a nurse.

It is advised to get out of the bed and walk around the room as often as possible with the help of nursing staff.

At the end of two weeks , once all counts get back to normal the patient would be able to walk on their own without any help.

A day starts with blood samples being drawn. The patient is given a bath ,dried , moisturizing cream is applied to the body and dressed. Allow the nursing staff to do whatever they would like to do. Just hand over your body to them and cooperate.They treat you like a baby. Enjoy the pampering :))

Breakfast is served . Time for medication. All medications are given through the chemo port. Lunch is served. One can watch TV. The cleaning staff do their job. Time for a visit by the doctors . Depending on the patients condition, several doctors will visit and at times they might disturb your precious sleep :).  A dietician does a followup. Watch more TV. The patient may puke a few times and visits the washroom a few times 🙂 Watch all your favourite programs and channels during these days .

I would watch Travel shows, Discovery channel , National Geographic, Cookery shows on various channels ,Bhakti channels , NDTV Goodtimes. I was least interested in knowing what was happening around the world wrt current news. There will be short naps now and then. My Oncologist said that I could use my smartphone/tablet/laptop but I had no interest in being in touch with anyone. Most of the time an IV bottle is connected and hence difficult to move.

At times I would request the nurses to stay with me and we would chat and watch TV together.There were 6 nurses in shifts and we would share our stories. I frequently wanted my feet to be massaged and the nurses would gladly do it.

The skin colour becomes darker by a few shades due to the chemo. This is when we realize that being alive is more important than the colour of the skin or the appearance :))

There was a huuuge window in my room on the 3rd floor which overlooked the entrance to the hospital. The window covered  3/4th of the wall. I would watch people go by and wonder why the world is so complex when all that matters is to be alive. Being alive itself is a reason for celebration and happiness , and everything else is a bonus :)) .

You are permitted to talk to your near and dear ones on the phone. They may be allowed to visit once or twice.

On one of the days I was allowed to  see them through a small window in the nursing station once my counts began to increase.

My family would be waiting outside the Main door of the isolated ward most of the time during the day . They would be busy arranging blood donors from family , friends and colleagues and eagerly look forward to listen to what the doctors had to say on my progress.

Every day they would see my plate of food arriving and going back without being eaten. I would feel like eating different stuff but when it was brought I was unable to take even a few bites . There is no saliva in the mouth and it becomes very difficult to chew/swallow.

I would be worried that I was unable to eat. How would my cells multiple if I dont eat ??!!

But they do , so don’t worry about it :)) . Relax 🙂

There are no pains because of the Chemo nor any other burning sensation in any part of the body.

When you are ready to be moved out the sterile ward , you can actually walk out on your own but do sit down in the wheelchair and enjoy the ride to a normal ward . It is a great feeling to be finally out in the world  :).

You will be in the normal ward for a couple of days. These few days seem like ages :)). Every hour seems like eternity. Finally it is time to go home … the sweetest place on earth 🙂

The next one month is going to be difficult when it comes to eating food. The nausea and vomiting continues . You will be given medication to reduce nausea. Continue to take fluids and protein supplements prescribed by the dietician. Ensure you meet the dietician before you are discharged.

Have patience ..a lot of patience is expected from the patient as well as the caregivers.


The patient feels very weak . The bones are very tender and some effort is required to even turn your body on the bed. But that’s okay . Things will improve . Do a few exercises while lying on the bed. A physiotherapist will guide you during your stay in the hospital.

Take all your medications without fail. Feel free to talk to your doctor as and when you experience any problem or have a doubt.

Drink lots of water.

Do not venture out of your house for a couple of months. Since the patients immunity is low they will be susceptible to infections. Need not worry even if there are any infections. Just go ahead and get the medications. Stomach , throat , eye , respiratory , skin infections are some of the common issues that one might face.

Have patience . This too shall pass !!

this too shall pass

In a few weeks you would want to eat all kinds of stuff , but go slow as the digestive system is not yet strong .

In a few months you will be back to normal and you can go back to doing whatever you were doing.

This is also the right time to look up for information on alternative therapies on the Internet. Do you own research and you will definitely find a way to stay healthy and beat the BIG C forever.

Best Wishes !!

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Vegetable Kichdi , my style !!

I go on a 24 hour fast once a week and end my fast by eating a bowl of hot Vegetable Kichdi.This is light on the tummy.A fast should never end with heavy food. This dish is made with Rice, Moong dal ,Veggies and is easily digested . I look forward to this treat at the end of the day. Here is the simple recipe.

Ingredients for one serving :


Mustard seeds 1/4 tsp

Cumin 1/4 tsp

Urad dal 1/4 tsp

Black pepper as per the spiciness that you can bear 🙂

It is OK if one of the above is missing in your spice rack. But pepper is a must.


Rice : 2 tbsp

Quinoa (optional): 2 tbsp

Moong Dal ( Split Green gram ): 2 tbsp

Wash and soak Rice and Quinoa in water and keep aside.


Ginger :  1 inch piece chopped into small pieces

Curry leaves : one or two sprigs

Veggies : you can use capsicum,  carrot, beans, cauliflower, cabbage, peas, corn or any other veggies. Any two veggies are good enough. I am using Capsicum and Carrot today.

One chilli

Ghee 1 tsp

Asafoetida : a small pinch

Salt : As per your taste

Water : 4 times the volume of rice , quinoa and moong Dal.

Place all of them in a bowl. You will need water 4 times this volume.

Preparation : Use a pressure cooker


Roast the moong dal in the dry pan till you smell the flavour of nicely fried moong dal. It should change into a very light brown colour. Empty the moong dal into another bowl.


Add oil in the same pan. Add mustard seeds, cumin, urad dal and black pepper to the oil. Let them splutter.


Add ginger pieces , chilli and curry leaves. Fry for 30 secs . Add all the cut veggies and stir for a minute.


Now , drain the soaked rice, quinoa and add  to the pan. Also add moong dal . Add water. Add salt . Close the pan with the lid and put the pressure weight. Let it cook on medium heat till you hear 5 to 6 whistles. Let the pressure reduce before you open the cooker.


Add the ghee and mix it well so all the contents get mashed up and the flavors combine well. Hot and yummy Vegetable Kichdi is ready !! You can eat with a little pickle or chutney on the side, if you wish. Your tummy will thank you 🙂

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Pics from a recent trip to our village

I was due for a BMA test in a week and  was a bit nervous and had this strong urge to spend a few days in our village before I went for the test.

Here are a few pics from this visit. These pics give a  glimpse of life in a village.

The winter months are here and village folks warm up with a bonfire in the early hours of the morning.
A group of women are warming up while discussing the days chores.




A dish TV antenna has been fixed to a dried trunk of a Palmyra tree.
A Palmyra tree is one of the most useful trees in this part of the country. The leaves of the Palmyra tree are used as a roof for their huts ,cattle sheds and fence. It is called a thatched roof and can be seen in the pic. The palmyra fruit is relished during summer months. Palmyra Toddy is a popular drink in the villages.











The cling clang sound of sheep bells is so soothing . The sounds from these bells , the cool evening sea breeze (this village is around 8km from the sea) and chirping birds can take us to a meditative state. This is bliss !!

I am back in Hyderabad now and as I close my eyes I transport myself to that scene and location :).




Found a few feathers of the ‘Indian roller stuck on the trunk of a palmyra tree. The bird must be nesting on the tree. A very beautiful bird, often seen flitting from one palmyra tree to another ,is usually found near agricultural fields in this part of the country. The bird appears mostly brownish with streaks of blue when perched . While flying its light and dark blue feathers are open and the bird appears very bright ans beautiful.

Found a link to a video of the bird in flight.




Love the contrast of a tender climber climbing up the rough trunk of a palmyra tree.




Rural atmosphere is very peaceful , less polluted and life is very simple . A village appears to be another far away planet far far away from the noisy Urban world. Feeling energized and rejuvenated after spending a few days there. I am also done with my BMA test and awaiting the results.

” We travel not to escape life, but for life not to escape us “


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Living with Multiple Myeloma since 4 years


It’s been exactly 4 years since the stem cells in my bone marrow started producing fresh and healthy white blood cells and other cells in the blood , while I was undergoing ‘Stem Cell Transplant’

In the BMT ward , each morning the nurse would take a blood sample to check my blood counts.
All of us were eagerly looking forward to the day when my stem cells would start creating various cells in the blood. The blood test on 1 Jan 2012 revealed the first few white blood cells .
A rebirth for me !

Am here now writing this after 4 years of that event. I am just 4 yrs old now 😉

A lot has happened since then.
There was a relapse in Dec 2014.
But thanks to Ayurvedic medication, I am now free of MM .

I am grateful to Lord Dhanvantari , the father of Ayurveda , who I met in the form of my Ayurvedic doctor.

Yes ‘Hope is Real’ .This was the slogan at Apollo Cancer Hospital in Hyderabad.
I could never comprehend the meaning when I was doing rounds for my check ups .
Those days I was sure this was a fatal disease. I was in a denial mode for two years, in a state of shock and moving around like dead.
But one day I had the courage to type the word ‘cancer’ on the keyboard. To look for information.
Spent a lot of time researching on cure for cancers. Didn’t believe what people wrote  and said on youtube about getting cured.
But I did a U Turn when I relapsed.
I told myself that I have to believe what was being said . That’s when I began to search further and dig deeper for information.
I zeroed in on ayurvedic methods and here I am, free of the disease for the last one year and confident that I will be free forever.

I had the hope and now strongly believe that ‘Hope is indeed Real’ .Hope can do wonders. Hope will show a way. Hope heals and Hope is the cure.