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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Update on my Bone Marrow Biopsy – M Band not seen !! 23 June 2018

It is one year since I got a Bone Marrow test done.

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I was diagnosed with MM in Oct 2011 and underwent Stem Cell Transplant in Jan 2012. Since then I have been doing the  Bone Marrow Test every six months. In June last year ie June 2017 ,  my Oncologist told me to come back for the test after a year !!. Once a patient crosses five years after a Stem Cell Transplant , the Bone Marrow Test is done once a year. That was the second best thing that happened to me. The best thing to have happened was in Feb 2016 when my Oncologist said I could stop taking Chemo Medications 🙂 .

I have been taking Ayurvedic medications since more than three years and the results are good.

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The Bone marrow sample was taken last week. Reports usually take around 5-6 days . I had been a little nervous while I was waiting for the Reports , though I was confident that all will be fine.

While I was in touch with the Hospital to check if the BMA Reports were ready , I was surprised to see a whatsapp message from my Oncologist after 5 days.

He sent me the Report via whatsapp !! There was no comment from him.

I opened the pdf document and quickly scanned for the words ” M Band ” or ” M Spike”, while my heart was racing. I did find the words ” M Band not seen ” .

Yayyy !!

There was a BIG smile on my face and I immediately called Dr Suresh.

He said ‘Everything is OK’ .

I said ‘Thank You Doctor , when can I meet you’.

He said ” what for ?”

I said ‘I would like to meet you’ 🙂

I then shared the Report via whatsapp with Dr Nitin , Ayurveda . He immediately called me.

He was very happy with what the Reports said.

Met Dr Suresh this morning .

He said ‘we don’t need to do the Bone Marrow Test from now on’. 

That is the greatest thing anyone like me would love to hear 🙂

I blurted ‘What Doctor, how can we stop?!!’

He said ‘just do the Electrophoresis test once every six months. As long as there is no M Band , there is no need to do a Bone Marrow Test’

I was happy with that advise.

Wow , no more piercing of my Sternum. 🙂

He then asked me if I had any other problems.

I asked him if Neuropathy is permanent and was happy to hear that it is reversible and no where it is written that it is permanent.

Sounds good but there has not been any improvement in my condition in all these years.

To alleviate my Neuropathy he recommended Pregabalin instead of Renerve which was advised by a Physician. Renerve does help but my B12 levels are exceeding the limits which not good either. Will try the Pregabalin tablets.

He then told me there are four new drugs for managing MM , with lesser side effects , one of them being Neuropathy. He also said that Bortizomib , the drug that I used , causes Neuropathy. This is good news . 

Its more than three years since I started taking Ayurvedic Medication from Dr Nitin and almost two and half years since I stopped taking Chemo medications. Dr Nitin now wants to reduce my curcumin dosage . However I don’t wish to hurry and plan to reduce gradually.

I also sent my report to Dr Gayatri, who was diagnosed with MM way back in 2002 . She has been a guiding and inspirational force for me since last three years. She had introduced Dr Nitin , Ayurveda to me. She hasn’t been taking Allopathy nor Ayurvedic medications since last several years and is doing well.

When I asked her how she Manages , she tells me that regular Pranayama , Yoga and Meditation do help in healing.

Felt so good talking to the Brave lady who oozes a lot of Energy. She is a God send.

Dr Nitin too had reiterated that Exercise, Pranayama, Yoga and Meditation can correct DNA problems. He insisted that I should be consistent with these practices.

Right now my highest priority is Pranayama, Yoga and Meditation along with Ayurvedic medication , proper diet and regular fasting.

Time to celebrate !!


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7th year after my Stem Cell Transplant for Multiple Myeloma

The last six years have been the longest years in my life. Extremely grateful for being given a second chance to tread our lovely blue planet .

Been living each day with gratitude and lots of hope. Doing my best to share my experience with Alternative treatment via this blog. Have been able to manage my condition (Multiple Myeloma) successfully. It’s been 2 years since I stopped Chemo. So far so good. Was able to help and guide other patients with MM who came across my blog and got in touch with me . Gives me immense happiness.

Learnt a lot about the importance of diet , fasting etc for preventing and treating Cancer. Most importantly , I have experienced the Miraculous healing properties of Curcumin , for managing my condition. Curcumin has powerful healing properties which can treat several diseases.

Nothing else in this world is more important than being alive. Everything else is a bonus 🙂 . Yes, it does sound like I am selfish 🙂 . Take utmost care of your health and love yourself a lot. Be healthy so you don’t have to trouble your near and dear ones if you fall sick.

I am so thankful to my Doctors , family , friends , colleagues and other well wishers who have been supporting me throughout.

happy


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Back to Curcumin from Turmeric

Went for a few routine tests namely CBP , LFT and RFT on 23rd Jan 2018 and noticed that my Globulin Serum had further increased from 3.8 (Nov 2017) to 4.0 . I was a little worried and expressed the same to Dr Nithin , my Ayurvedic Doctor who then changed my medication from Turmeric to Curcumin. I was advised to use Turmeric instead of Curcumin , for a few months during the later part of 2017.

I guess it was too early for me to make the change from Curcumin to Turmeric . Curcumin is an extract from Turmeric and hence more powerful. It is the Curcuminiods in Turmeric which are effective in the activation of Apoptosis (cell death) in the cells.

It is now one month since I changed back to Curcumin. Meanwhile I was down with Sore throat and took Antibiotics during first week of Feb 2018. I discussed with Dr Nithin and he decided to increase the dosage of Curcumin (500mg) from 3 caps / 3 times a day to 4 caps / 3 times a day . Ashwagandha (500mg) was also increased from 2 caps / 2 times a day to 2 caps / 3 times a day.

Its been a month since my last tests and hence went for the routine tests yesterday. The reports were very good. All parameters were normal .

Hb is 11.2

Creatinine is .9

ESR is 34 , not yet in the normal range (0 – 20) . Not too bad , it was 65 last month.

Globulin serum is back to the normal range (1.8 – 3.6) . Reduced from 4 to 3.6 .

This is great news 🙂 . This was something that was worrying me. Feeling very happy now 🙂

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Dr Nithin also told me to do a test named Metabolic profile c .
Awaiting the results of this test.


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Curcumin : Availability and its affordability by Common man

A lot of research has been carried out on the efficacy of Curcumin for treating various types of Cancers. There are several evidences from all over the world that prove the positive results of using Curcumin . Curcumin is being widely used for treating different Cancers. Not just Cancers but various other chronic  illnesses too.

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I have been using Curcumin capsules for Multiple Myeloma ,since last two and half years with good results .  Been off Chemo since more than one and a half years , on the advise of my Oncologist. I get Curcumin supplements from my Ayurvedic Doctor.  Usually patients are recommended a maximum dosage of around 8gm of Curcumin per day whereas I have been taking 3.5 gms of Curcumin per day. A single capsule of Curcumin , from most brands , contains 400mg of Curcumin extract . I take 3 capsules , thrice a day.

There are several brands selling Curcumin ,which can be bought online. Curcumin supplements are expensive and are out of reach to common man .

There is no way that information about  the healing properties of Curcumin  is known to common man. Most may come across unauthenticated self proclaimed healers or quacks who trap patients .

A lot of information is available on the Internet ,which is accessible only to those who are literate and have belief in Alternative treatments.

Most patients simply give up and accept their fate as soon as they are diagnosed.  The family members/caregivers too fall into the trap thinking it is a one way highway to heaven.

India is one of the largest growers of Turmeric, from which Curcumin is extracted. It is good to know that Turmeric/Curcumin is getting exported and is being sold/consumed all over the world for its medicinal properties.. Unfortunately Indians themselves are not aware of the potency of Turmeric. Though Turmeric is used in almost all recipes in most parts of India, the quantity used is very small and due to its low absorb-ability, the benefits are not being exploited. It is mostly being used as a colouring agent rather than for its medicinal properties. However, it is a fact that the number of cancer patients in India is much less compared to other countries due to regular consumption of Turmeric via their diet.

I began using plain Turmeric after reading a blog by one Ms Margaret from Italy. I was inspired by her success story and started taking Turmeric (higher quantities) from my own kitchen . What followed is an exciting journey which I have chronicled in this blog.

Need of the hour is to give wide publicity so that general public is made aware of the potency of Turmeric in preventing and treating this dreadful disease and other chronic diseases too. Quantity of Turmeric has to be increased in our recipes. Not the store bought turmeric powder but that which is prepared at home from the dried Turmeric root. This  would help a lot in prevention of such diseases.

Extraction of Curcumin from Turmeric involves a complex chemical process . Also Curcumin comprises only 5% of the weight of a Turmeric Root.

The government should subsidize Curcumin so that common man can afford.

It pains a lot  when I  hear that a patient has lost the battle .

If only they had the hope to live and not give up,

If only they were aware of Alternative treatments ,

If only they knew about Curcumin,

If only they had faith in the potency of Curcumin,

If only they had access to a good Ayurvedic practitioner,

If only they could afford it,

they would have been well and alive.

Unfortunately there are too many if’s , which is not a good sign. Too many lives lost in spite of having a solution 😦

As of now , I am able to share my experience  through this blog.

I also share my experience via a Whataspp group which has members who are Cancer Patients / caregivers.

My Oncologist is aware that I am using Curcumin . I requested him to suggest Curcumin to his other patients as well. He himself had recommended Tinospora Cordifolia to me after my Stem Cell Transplant , 6 years ago . This is a natural herb which improves immunity and I continue  taking  this .

I also share my experience with others who are eager to listen and are interested in knowing more about my healing experience.

NGOs can help in spreading the information about Turmeric/Curcumin and should also be able to supply Turmeric/Curcumin to patients who cannot afford.

I am looking forward to the day when everyone is aware of the healing properties of Turmeric/Curcumin and is affordable by one and all .

There is simply no reason why so many lives should be lost.

Most important : It is highly recommended to increase the consumption of Turmeric through the diet, thereby  preventing and managing most of the chronic illnesses.

 


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Consumption of Curcumin / Turmeric, its effect on Body Heat and remedies.

 

Curcumin is definitely helping many patients all over the world in successfully managing Multiple Myeloma .

I have been using Curcumin and Turmeric since 2015.

When I recommended Curcumin to other MM patients/Caregivers , I got a feedback that many were unable to take Curcumin as they were experiencing uncomfortable side effects.

Nose bleeds and  diarrhea seem to be some of the common side effects.

Consumption of Turmeric and its extract Curcumin , might increase the body heat in a few people. This in turn results in the above effects.

I would recommend foods like Cucumber  ,  buttermilk etc which cool the body. These foods help in balancing the body heat.

It is equally important that we avoid foods which increase Body Heat. Avoid Oily foods , Cold Drinks, Caffeine , Spicy food .

Everyday, I carry a box to work , that has Cucumber which has been peeled and cut into pieces. I have it as a snack between breakfast and Lunch.

My Cucumber for today 🙂

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I also carry buttermilk , in a bottle , to work everyday.

My advise is to consult an Ayurvedic practitioner rather than losing faith on Curcumin because of the above side effects . These side effects can be easily overcome and managed by simple home remedies and one can realize the benefits of Curcumin.

So , don’t loose heart …. have faith … do your research on the internet… a lot of information on foods that cool the body is available out there on the Internet….and get in touch with an Ayurvedic practitioner.

Stay Coool !


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Taming Multiple Myeloma – A Success Story from UK

Came across this article where a 67 year old woman from UK has successfully tamed Multiple Myeloma.

Dieneke Ferguson, the founder and CEO of https://www.hiddenartshop.co.uk learnt about Curcumin through Margaret’s Blog .

I was very excited when I read that Dieneke Ferguson too , just like me , was also inspired by Margaret’s Blog and started using Curcumin.

Here is the whole story :

How our CEO Dieneke Ferguson beat her incurable cancer through curcumin

Hopefully this news will inspire many others to believe that there is hope and not to give up.

 

 

 

 


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Use of Turmeric / Curcumin in Indian Customs and Traditions , Health and Healing , Beauty treatments

Turmeric Vs Curcumin :

Turmeric is a root/rhizome, a golden-colored spice that belongs to the ginger family . Widely used in India for different purposes. The words Turmeric and Curcumin are usually used interchangeably but Curcumin is an extract from Turmeric root, which gives the yellow color to the spice and has several healing properties. Different methods are used to extract Curcumin from Turmeric. Turmeric contains various ”curcuminoids” and Curcumin is one of them. Curcumin is a whole Pharmacy in itself and is used to treat several health conditions. Extensive research is being carried out on Curcumin in the western world for its healing properties..

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This spice has always been revered in India since thousands of years. But ,it is very unfortunate that the healing properties are unknown to majority of the current generation and the knowledge is slowly getting lost. Hopefully the research that is being carried out in the western world will bring to light the potency of Turmeric and thereby heal the world.

Here is an attempt to describe how Turmeric has been in use since centuries in Indian Customs and traditions.

Hindu Customs and Traditions :

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A few drops of water is added to Turmeric powder which is then shaped into a small solid cone . During Hindu festivals this form is worshiped as ”Lord Ganesha” , the remover of all obstacles. It is a fact that none of us  wish to face any obstacles in whatever activity we do/take up. This is a method of reinforcing our will power and also to invoke the blessings of the almighty.

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During Fridays, festivals and other auspicious events, Turmeric paste is applied on the threshold of the main entry door of the house and all other doors that lead outside the house. This ensures that insects and ants do not enter the house. Now a days this is done away with by using paints. Beautiful designs of flowers and leaves are drawn using colourful paints.

A married woman gives Turmeric root/powder along with ‘kumkum’ to other married women  (neighbors, relatives , friends etc), during festivals after inviting them into their homes. This is done as a blessing and good wishes for the long life of the woman and her husband .

Turmeric during weddings :

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Wedding preparations start with the making of Turmeric powder at home. An auspicious day and time is chosen for the event. A few women (relatives, friends neighbors) gather and use a mortar and thistle to crush the dry Turmeric root and symbolically prepare Turmeric powder.

A lot of Turmeric powder is used during Hindu weddings. There are a minimum of  5 rituals, spread over a few days , which require the use of Turmeric powder.

Haldi Ceremony is a very important part of a Hindu wedding. The bride and groom are smeared with a paste made by mixing Turmeric powder , sandalwood paste and rose-water, in their respective homes , couple of days before the wedding. Relatives friends and neighbors gather and make it a fun event.The Bride and Groom get a beautiful glow on their skin 🙂 . . This is repeated three times on three consecutive days. A natural beauty treatment instead of going to a beauty parlour or a Spa.

The bride and groom wear clothes that have been dipped in water that is mixed with turmeric powder . The cloth then gets dyed with a light yellow color.

Turmeric powder is mixed with rice which is then called ‘Akshintalu / Akshatalu ‘. These Akshintalu are used during puja and also used to bless others by sprinkling a little on top of the head of the one taking blessings who bows down and touches the elders feet.

In South Indian weddings , this rice is taken with cupped  hands by the bride and groom and  is poured on top of each others head during the wedding ceremony.

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A long thread is smeared with Turmeric paste and a Turmeric root is tied at the center of this thread. During the wedding ceremony the groom ties this thread around the neck of the bride with three knots.

 

 

Health and Healing :

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An Indian kitchen is incomplete without Turmeric powder in its spice box. Almost all Indian recipes contain Turmeric powder.Thus ensuring that turmeric is taken everyday in our diet. Turmeric also enhances the color of the dish. The anti bacterial properties of turmeric prevents food from decaying quickly.

 

Turmeric powder is Mixed in milk and consumed in order to treat coughs and colds.

Turmeric is supposed to be good for the Liver and digestion.

Turmeric is applied to bruises as it is an antiseptic.

Small balls are made with wet Turmeric powder. A few of these are consumed in order to reduce menstrual cramps .

Turmeric is a blood thinner and reduces cholesterol. Helps in controlling Blood Pressure.

It is anti-inflammatory. Inflammation is the major reason for most of the chronic diseases including Diabetes , Cardiovascular diseases , Arthritis , Cancer etc.

Curcumin induces apoptosis in tumours . It induces cell death in cancerous cells thereby stopping the multiplication of these cells.  A lot of research is being carried out and there is sufficient proof that this property of Curcumin can treat almost all types of Cancers.

Beauty Treatments :

Many South Indian women apply turmeric paste to their feet every Friday and during festivals and other religious events. Being an antiseptic it protects the feet from infections and cracked feet.

Turmeric paste mixed with other items like milk, chickpea flour etc is applied as a face mask to get rid of acne, pimples and other skin problems . It is also an excellent exfoliant and gives a glow to the skin.

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No wonder Turmeric has always been given a lot of importance in Hindu customs, traditions and rituals since a long time and is treated with piety and respect.

It is highly recommended that everyone include more Turmeric in their diet. It is also advised to prepare your own Turmeric powder instead of using the store-bought powder which is usually adulterated.

I have been using Curcumin every day since Jan 2014 , to fight Multiple Myeloma. Currently not using any other drug. Hope to manage my condition as long as I can.

~Yad Bhaavam Tad Bhavathi  : You become what you think ~