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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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7th year after my Stem Cell Transplant for Multiple Myeloma

The last six years have been the longest years in my life. Extremely grateful for being given a second chance to tread our lovely blue planet .

Been living each day with gratitude and lots of hope. Doing my best to share my experience with Alternative treatment via this blog. Have been able to manage my condition (Multiple Myeloma) successfully. It’s been 2 years since I stopped Chemo. So far so good. Was able to help and guide other patients with MM who came across my blog and got in touch with me . Gives me immense happiness.

Learnt a lot about the importance of diet , fasting etc for preventing and treating Cancer. Most importantly , I have experienced the Miraculous healing properties of Curcumin , for managing my condition. Curcumin has powerful healing properties which can treat several diseases.

Nothing else in this world is more important than being alive. Everything else is a bonus 🙂 . Yes, it does sound like I am selfish 🙂 . Take utmost care of your health and love yourself a lot. Be healthy so you don’t have to trouble your near and dear ones if you fall sick.

I am so thankful to my Doctors , family , friends , colleagues and other well wishers who have been supporting me throughout.

happy


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Cough , Cold , Allergy , Asthma : Ayurveda for Prevention and Treatment

I am one of those  who are highly allergic to all kinds of dust and frequently end up with a Sore Throat followed by Bronchitis. A visit to the Doc , followed by Antibiotics and Nebulization … a ritual that was inevitable. 

I was able to successfully get over a recent episode with Ayurvedic Medication and no Antibiotics. I am extremely happy that I can now manage my problem without Antibiotics. Thanks to Dr Nithin, Ayurveda.

However, I still did not get an answer as to why only some people are affected by dust and pollution. Millions of people around us are unaffected and continue to live/work in highly polluted environments. How are they managing ?

Here is a beautiful article that explains  how and why a person ends up with Cough/Cold/Asthma. Understanding ‘Cockroach Theory’ will help in understanding how the Immune System works in our body .

https://www.practo.com/healthfeed/ayurveda-treatment-for-allergies-asthma-29041/post

This article is written by Dr Nithin ,Ayurveda .

I had to read this article a few times before I fully understood the how and why and what has to be done to prevent an occurrence of Sore Throat and Asthma.

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Here is a summary of what I learnt from that article –

Cockroach Theory : A panic reaction to a situation , whereas the solution is to respond in a calm and composed manner. An example : Customers in a restaurant get panicky and react clumsily on seeing a cockroach whereas the waiter , on whom the cockroach finally lands , stays still , is able to catch hold of the cockroach and throws it out.

The above theory will help us understand how the Immune cells in some bodies overreact instead of responding , when rogue viruses/bacteria enter our body. This overreaction results in excessive production of mucus which clogs the respiratory system. The body then tries to expel this mucus by coughing resulting in a Sore throat. The reason for this kind of reaction by the body is ‘Aggravated Pitta’ .

‘Pitta’ has to be reduced by the following methods (from the article):

  • Recipes like sesame seeds boiled in milk or pumpkin pulp roasted in homemade ghee or almond porridge, halwa etc can be taken.
  • Liberal use of turmeric either in milk or dal to be encouraged as Turmeric reduces inflammation and also breaks rigid bonds of thick mucus which can be expelled easily.
  • All asthmatic and allergic rhinitis patients should take herbal tea of ginger, black pepper, Tulsi leaves, clove, and coriander seeds.  
  • They should eat less of wheat and rice and should consume more of millet like Jwari or Bajri .
  • Once in a week all asthmatic should take Kulthi (Horse gram) dal.
  • Patients of allergic rashes can try having mixed powder of black pepper- 1 or 2 pills + ginger 1/4th teaspoon and candy sugar one teaspoon, once or twice a day.  
  • All of them should strictly avoid all kinds of fast or junk food, pickle, sauces, milkshakes .
  • They should not consume curd, non vegetarian food, heavy , fried food  at night time.
  • All asthma, allergic rhinitis and urticaria patients should religiously do pranayam, as deep breathing will reduce hyper activity and will relax smooth muscles of the air ways, thereby reducing spasms in the air ways and reduction in the episodes of Asthma. Plus deep breathing also helps in reducing inflammation in blood vessels thereby reducing allergic rashes. 

 

My Plan of Action :

I have started consuming Herbal Tea (ingredients mentioned above) . Will write a post on how I prepare this Herbal Tea.

I just bought Horse gram and looking for recipes on the Internet.

I have to further reduce intake of rice. I rarely consume wheat.

I include Turmeric in the Herbal Tea.

I avoid junk food and don’t consume curd/non-veg at night.

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ayur

 

 

 


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Resistance to Antibiotics and Ayurveda to my rescue.

I had been resistant to Antibiotics much before I was diagnosed with Multiple Myeloma in 2011. My frequent bouts of sore throat would not go away in spite of using Antibiotics prescribed by the ENT Doctor. He would often tell me to meet him and give feedback after using Antibiotics. At times there would be an improvement and at times I would not get any relief. When there was no relief he would give me another set of medications which I would promptly gulp down . The pain and symptoms were so bad that I would not think twice about what I was gulping.

I was diagnosed with MM in Oct 2011, underwent a Stem Cell Transplant in Jan 2012.

I continued getting these attacks and as usual I was taking Antibiotics. These attacks are always triggered due to any kind of dust. I reduced my visits to Malls, Supermarkets , clothes stores, theaters, exhibitions and other public places . But dust finds its way into my body some way or the other 😦 . There is no way I can completely isolate myself from all kinds of dust. Another trigger for an attack is eating/drinking cold foods like ice cream or any cold drink which I stopped having anyway.

Had another attack recently and this time I consulted my Ayurvedic Doctor about my condition and whether I should take this new set of Allopathic medication. He said that I should not be taking Antibiotics as they affect the Bone Marrow and that the new set of medications were Steroids which are an absolute No-No.

What do I do now ??! , I was very sick …I had a very irritating wet cough , a runny nose , had fever that went up to 102 deg and my bronchitis was also severe. I continued the nebulisation with Levolin and Budecort. I was afraid I would end up with Pneumonia. Meanwhile my Ayurvedic Doctor recommended that I do a Sinus X-ray, Chest x-ray, LDH Serum and Urine Culture . Had to wait for two days before all the reports were out. Was glad that all the reports were negative :).

Meanwhile he recommended a herbal tablet for the runny nose and ‘Kantakari Lehyam’ for my Bronchitis. This Lehyam is like a paste ..a sweet , pungent paste similar to Chyawanprash. My symptoms slowly reduced. A lot of patience was required as each painful hour went by very slowly. Took 5 days off from work . Felt like a dead person during those days and finally when I was ready to go to work I felt as if I was reborn and like a bird that just got out of a cage 🙂 .

So glad I was able to escape from using Antibiotics and Steroids, for the first time in my life.

Meanwhile my Ayurvedic Doctor also sent a ‘Mishran’,  which I am supposed to take with Warm water.

The meaning of the word Mishran is ‘a mix’ , a mix of several herbs in a powdered form, for improving immunity.

Am almost normal now but continuing the new Ayurvedic medications along with Curcumin, Ashwagandha , Satavari etc.

I am envious of people who are able to dig into ice creams and soft drinks and are able to withstand any kind of pollution/dusty environments.

Looking forward to a day when I can move around without fear of another attack. A day when I can eat an ice-cream and have a cold drink 🙂 … hmmm , I know I am asking for too much 🙂 .


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Raw Turmeric Vs Turmeric powder

I am in love with Turmeric, the Golden spice. A lot of research has been done on the health benefits of Turmeric and a lot of people the world over are experiencing positive results.

My being alive on this planet is primarily due to Turmeric.

Turmeric is widely being used to treat several illnesses from minor to major chronic illnesses of the body and the mind. There is a lot of information on the Internet.

Everyone is aware that prevention is better than cure but how many actually take the effort to be healthy.  We don’t even know what to do to prevent illnesses. With the kind of diet and pollution levels ,most people should be worried about ending up with some kind of illness, but are clueless as to how to prevent.

By consuming Turmeric we can greatly reduce and even delay the probability of occurrence of illnesses.

Almost all Indians consume Turmeric via their food . Turmeric powder is one of the key ingredients in most Indian recipes. However , the quantity and quality of the Turmeric powder that is used should be increased so as to get the maximum benefit.

Turmeric can be used in the form of a powder or as raw turmeric. It is preferable to use Raw Turmeric .

The store bought powders may be adulterated. It is best to prepare the powder at home using dried Turmeric root. First crush the root into smaller pieces and then grind it in your mixer grinder.

It is best if you can get hold of raw Turmeric root. You can also grow it in your garden.

Here is a link that tells you why –

https://www.turmericforhealth.com/turmeric-queries/7-reasons-why-raw-turmeric-maybe-better-than-powder#rawturmeric

This website has a lot of information on the health benefits of Turmeric.

Hope you too will benefit from this Golden spice.


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Update on my Condition – Multiple Myeloma

It is 3 months since I had my Bone marrow test .My results were -ve , No M-spike was seen.However , my Oncologist wanted me to be back with my CBP , LFT and RPT reports after 3 months. I actually expected he would say  I can come back after one year 🙂 but he didn’t want to take any risk. So I complied. I remember him saying that after 5 years of having the Transplant (Bone marrow Transplant) , I will have to take the Bone Marrow Test once every year. For the past 5 years I have been doing the test every 6 months .

My Hb touched 11 for the first time in decades. The range for a healthy woman as per my report is 11-14. This is an achievement !! A record break !!

Yayyyy !!

My Globulin Serum too is 34 which is well within the range. A bigger achievement !!

He was very happy on seeing the reports 🙂  and exclaimed ‘you are off all medication isn’t it ?!!’.

I said “Yes Doctor, but I am continuing to take Curcumin and I am sure it is helping me “.

It is one year since I stopped chemo and taking only Ayurvedic medication.

He then asked me , “Do you think  people should go for a Bone Marrow Transplant”.

I was confused.

I immediately said “yes,  there is no other option “.

I then reminded him about the advise he gave me , after my Bone Marrow Transplant (in Jan 2011)  , about using “Tinaspora Cordifolia” , to improve my immunity. Later on , it was this advise that motivated me to look for alternative treatments and I finally found the way.

Having started using Curcumin 2 years ago ,followed by good results , I had been very eager to push Curcumin  and I wanted my Oncologist to prescribe Curcumin along with Tinaspora Cordifolia to all his other patients.In fact, I started using Curcumin, two years ago, just when I was advised to go for a second Bone marrow transplant .

The right time had arrived and I blurted out ” Doctor , you can also recommend Curcumin to other patients. I have read a lot on the Internet and it prevents and treats all types of cancers.My ayurvedic doctor gives me Tinaspora Cordifolia too ,along with Curcumin and some other herbs”

He nodded and  I felt relieved that I finally said what I wanted to say :))

It is a delicate situation wherein a patient suggests an Allopathic Doctor to prescribe Ayurvedic Medication to his other patients . I am so glad that my Oncologist is open to try out other forms of treatment and encourages his patients.

Hopefully more patients will benefit and will be encouraged to try ayurveda , the way I did.

My sincere thanks to Dr Kochar, Ayurveda and Dr Suresh , Oncologist.

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My current regimen for Multiple Myeloma

I was diagnosed with Multiple Myeloma in Oct 2011. I Underwent Autologous Stem Cell Transplant in Dec 2011.

I was on Thalidomide from June 2012 to Dec 2014.

In Dec 2014 my plasma cells started increasing and my Oncologist suggested that I go for another Transplant. I was put on Lenolidamide.

After some research on the Internet I started taking Ayurvedic medication. After three months my condition improved.  I met Dr Kochar in Apr 2015 and started taking his medication along with Lenolidamide.

On the advise of my Oncologist , I stopped Lenolidamide in Feb 2016 , as I was in remission.

That was the most miraculous moment in my life 🙂

I continue to take Ayurvedic medication prescribed by Dr Nitin Kochar, Mumbai.

I am currently taking the following Ayurvedic medicines :

Curcumin                                                                                                                                         Ashwagandha                                                                                                                             Tinaspora cordifolia                                                                                                                     Satavari                                                                                                                                           I also take another tablet which is a mix of several herbs.

I also take allopathic supplements like Renerve (Mecobalamin), Antoxid HC (Selenium+Copper+ zinc ) , and a tablet whenever my uric acid levels are on the higher side. I also take Folvite daily.

I fast one day every week.

Exercise is always recommended but I was unable to do any form of exercise all these years as I felt weak. I now feel strong enough to go for a walk . I started going for walks since one month and I am enjoying. I currently walk a distance of 1km in 15 mins, straight after work before I go home.

I do pranayama and meditation along with few simple yogasanas in the morning before I go to work.

I also follow the diet prescribed by Dr Kochar.

keep-smiling

Dr Kochar has put a smile back on my face.

Thank you , Doctor !!


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Update on my condition – Multiple Myeloma

Its been a while since I updated my status wrt Multiple Myeloma. Got the BMA, Electrophoresis and Microglobulin tests done about 10 days ago. The samples are  sent to a lab in Mumbai and it takes 7-10 days for the results to be declared.

Went to the counter in the hospital yesterday, where the Reports are to be collected. The person at the counter took almost half an hour to trace my reports. I was already tense for the last 10 days and the tension was mounting. The moment my Reports were found and handed to us , I quickly grabbed the papers and began scanning for the words ‘M Spike’ or ‘M Band’ . Found the words ‘No M Band is seen’ and heaved a sigh of relief. Quickly thanked the Almighty and then proceeded to meet my Oncologist. He took some time to read all the statistics on my reports and exclaimed ‘Wonderful !!” . Told me to meet after 3 months with my CBP,LFT and RFT reports .

What a relief !!

It’s been 5 years since I underwent an Autologous Stem Cell Transplant.

I sent a msg to my Ayurvedic doctor while we (Hubby and Dad) sat in the hospital canteen.

He was happy and congratulated me .He too had been eagerly waiting for my results.

I am off chemo since last 10 months and taking Ayurvedic medication for the last one and half years. All the credit goes to Dr Nitin for treating me and following up closely on my progress. While he feels that my faith in Ayurveda and following the protocol religiously is helping me. Yes ,ultimately it has to work both ways along with God’s grace  :))

top-of-the-world

Yayy ..time to celebrate !! :)) with a cake :))