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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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In search of Desi/Native cows..drive to the outskirts of Hyderabad

Please skip reading this post if you find this topic gross.

I have been growing plants using organic products for many years. I do not use any chemical fertilizers. Food grown using organic products is tasty, has more nutrients, and is free of poisonous pesticides. Whatever little i grow, I wish to grow organically.

I prepare pesticides at home using garlic,ginger,green chillies, asafoetida, turmeric powder, soap nuts etc. I sprinkle wood ash on pests. I use neem oil too to get rid of pests.

At times, I also buy natural pesticides and fertilizers like jeevamrutham, Ghana jeevamrutham,panchagavya, agniastram, etc. These are made with Desi cow products like urine, manure ,jaggery, Chana powder, etc. However, they are very expensive.

I also prepare compost using kitchen waste and dry/green leaves from the garden itself. This is an excellent fertiliser that takes two to three months to decompose.

Epsom salt and karanji powder also help in fertilizing the soil, and i add these once a month.

LAB, which is Lactic Acid Bacteria, helps in improving the fertility of the soil. I prepare LAB at home using rice water and cow milk.

Goat manure is now available in few stores which i add once in a while. This is expensive.

Desi cow manure is an excellent organic fertilizer but very difficult to find. ‘Desi’ means ‘local’ or ‘native’. I had this strong wish to procure Desi cow manure. Desi cow manure is the best fertiliser as it contains all the microorganisms that help extract minerals from the soil and provide them to the roots of the plants.

Plants, in turn, feed sugar to these microorganisms. They are in a symbiotic relationship. Isn’t this interesting. Only Desi cows have all such microorganisms in their gut.

A few years ago, I saw Desi cows in the outskirts of our city and decided to go in search of them. So, mom and I went with our driver.

As we approached a village ,we saw a cow and a calf in a shed. The cow was brown in colour.I was excited that we found a desi cow. But Srinu ,our driver, told us that it is not a desi cow but a jersey cow. It is easy to get confused between the two unless one knows the differences between a Desi cow and a hybrid cow. I looked at it once again and saw that it did not have a hump. The back was flat. I was disappointed.

We then came across a few cows grazing in the open. We looked around to see if a cowherd or a shed was nearby. We found a farm house with a shed. We drove closer to the farmhouse and met the watchman there and asked if they sold Cow manure. They did not have any dry manure and told us that they had applied all the dry manure in the fields. They had wet manure, which is no good.

We started driving further. We came across several farmhouses, cricket grounds , a few houses here and there.

We then came across big shed with several buffaloes resting. We drove closer and saw a few native cows. We saw the caretaker in deep sleep under a neem tree. We decided to go ahead with buffalo manure. It was lunchtime, and we were hungry. We decided to have lunch and hoped the caretaker would wake up. We packed lunch for the trip. The guy woke up and refused to give us the manure and told us to talk to the owners. We decided to look a little further.

Very soon, we saw lots of Native cows grazing freely. Native cows are always allowed to graze freely in the open. We drove closer and saw one guy lying under a huge tree. We saw a huge shed further up and started driving towards it. We saw another guy guiding the cows. Srinu signaled this guy to come near us. He then told him our requirements. This guy then signaled to the guy under the tree almost 200 meters from where we were.

That guy came, and Srinu discussed everything, including the price. Very soon, three bags were filled with dry manure and loaded in the car dikki. Meanwhile, we asked him a lot of questions about the cows. They looked very different from the native cows that are usually found here. Their horns were huge and thick , and their faces were short. Learned that they are kankrej cows from Gujarat,that they give 3,4,5 or 6 litres of milk per day, that one liter is sold for Rs 100.

Here are a couple of videos from the location.

Finally ,I successfully managed to get hold of Native cow manure.

Hope to revamp my garden with the best natural ferliser and reap good harvests.

Enjoyed the long drive out of the city and got some fresh air too.

I always look forward to such long drives, which energizes me.


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December musings-2021

At the fag end of this October, I dug out my sweaters ,washed them, and kept them ready for the upcoming winter.

The winter months here in Hyderabad start in November and last till February.

In Hyderabad,  we begin to feel the change in temperatures during Diwali; the date is usually at the end of October or early November. The weather suddenly changes from being wet to cold. During the past years ,I have also noticed that around Diwali,  the rainy season comes to an end with a light drizzle, and the evenings begin to get cooler.

This year , during Diwali and for several weeks after Diwali too, the weather was cloudy most of the time. However, there was no drizzle. And when the sky is cloudy , the weather is not  cold. The clouds trap the warmth from the earth, and so it was warm even when winter season had officially begun.

The ceiling fans in our home continue to be ON even today, whereas during the previous years ,I used to have the heater ON during the nights in December. This year, until now ,I didn’t feel the need to bring out the heater. We have a small portable heater that keeps the room warm all night when it gets cold. The day temperature here in Hyderabad usually hovers around 20 degrees Celsius, and at night, the minimum is around 12 degrees Celsius . These temperatures are actually quite comforting compared to the colder countries, where central heating is a must.

It is past mid-december now, and the temperatures are slowly dropping.

Winter is the only season during which I really enjoy cooking in the mornings. Nice to feel warm around the stove while cooking  breakfast and lunch 😀.

We ensure all the doors and windows are tightly shut all the time to keep the house warm. One problem due to this is that the smells from all the cooking get trapped inside the house, in spite of the chimney and exhaust fan being ON.

I spend at least an hour in our Balcony during the mornings and enjoy the warmth from the sun while sipping hot herbal tea. Our balcony faces east, and so the morning sun helps in getting some vitamin D.

Here is the view I get to see while I warm up in the morning.

I noticed a strange astral phenomenon during the winter months. The sun seems to rise in the East and seems to set in the South. This is a practical demonstration of the Earth being tilted at an angle from the north. India is in the Northern hemisphere .During winter months, the southern hemisphere is closer to the Sun, and the Northern hemisphere is away from the Sun. When the Earth rotates around itself in this position, the places in the Northern hemisphere experience this phenomenon where the Sun seems to rise in the East and sets in the South. Surely, our ancestors keenly observed this phenomena and concluded that the Earth is slightly tilted and also observed the differences in weather is due to the rotation and revolution of the Earth. Very interesting.

No wonder our ancestors were able to observe nature closely and discovered a lot about nature and the stars, they lived and worked closely with nature ;there were no tall buildings that blocked the view of the sky.

Hyderabadi winters are cold and dry, causing chapped skin . As a result, the skin cracks up and results in an itching sensation. It is important to keep the skin moist by using a moisturizer or by applying oil on the skin before taking a shower.

Winter also disturbs the immune system and causes coughs and colds. Nature bestows us with fruits that are high in vitamin C during the winter season and wants us to eat more of these.I love fruits and enjoy oranges, custard apples, strawberries , and Amla that I order on Farmizen. These are organically grown and are delicious.

Every December ,my memories take me back to December  2011, when I was admitted to Apollo hospital in Hyderabad for my BMT. Those memories are painful, and so I don’t like December.

It’s 10 years since, but the memories are still fresh.

I will pen down my thoughts and memories in my next post.

Till then, take care and stay safe !!


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My Ayurveda Doctor, to me: According to me, you are Cancer Free !!

I have been taking Ayurveda Medication for Multiple Myeloma from my Ayurveda Doctor every month. I have been prescribed several types of medicines with different dosages during the day .

This month too my medicines were delivered , but I opened the parcel only after a few days of receiving it. You know the virus thing and not to touch parcels for a few days and leave them outside the door thingy 🙂

When I opened the parcel I found that the required dosage of tablets/capsules was missing from a couple of medicines. I then messaged my Doctor informing the same. He said I should be reducing the dosage of medicines. I refused to accept what he said and said that I prefer to continue the same medication for ‘some more time’ .

He then said that I should reduce my dependence on Medicines and that I should be more confident and do meditation also.

I said OK and then …..

My Ayurveda Doctor : According to me, you are Cancer Free !!

I couldn’t believe those words. Those were some very precious words that any patient would love to hear from a Doctor. I was feeling overwhelmed and my eyes were welling up.

While it is true that my last test reports , few months ago , were all normal , I didn’t want to rush and reduce the dosage.

I do believe that my new ‘Natural Lifestyle’ along with Ayurveda is doing wonders for my body. I do feel good and able to manage most stuff on my own at home and at work too !! . I do get a lot of help from hubby and son 😛

Its been more than 5 years since I started taking Ayurveda Medication and No chemo since then.

And its been 5 months since I started following the Diet prescribed by ‘Natural Lifestyle’ . Surely the combination is working for me 🙂

Thanks to the Almighty for showing me the right path.

I hope and wish more and more people give up wrong eating habits and spend more time on improving their health by eating wholesome food that comes directly from Mother Nature, by exercising, Meditation and most important to have a free mind by letting go , being grateful, by forgiving self and others , giving up resentment and being compassionate to all .

~Love U Life ~


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Father’s Day 21 June 2020 , World Yoga Day and Solar Eclipse

India celebrates a lot of festivals which are more religious or connected with Nature , Seasons or Harvest.

With all the communication happening all over the world and people travelling all over, we too have incorporated some of the special days being celebrated in other countries. Father’s Day is one such day.

Father’s play a very important role in Indian society. They are the bread earners in majority of the families and take care of the children till they are grown up and begin to earn. There are several families where the parents and son continue to live together even after the son is married. A lot of respect is given to parents.

Everyday is a Father’s Day in such families.

However, this specific day which is celebrated on the 3rd Sunday of June every year since 1910 is definitely special. This day gives us the opportunity to recall all the guidance and support given by our Dad’s during our growing years. It is an opportunity to stop and think about Dad’s who have made a lot of sacrifices to provide for the children. An occasion to celebrate the day with some special moments with our Dad’s and to show our love and affection.

Today is ‘World Yoga Day’ too. If Father’s Day is imported into India , Yoga Day is being exported to the World. This is exactly what the world now requires. To imbibe the best from all over the world and evolve into better human beings. Hubby wanted me to click a few pics while he does a puts Yoga poses. It was fun directing and clicking. These pics were then sent to their HR team asproof of doing Yoga 🙂

In this part of the country the Solar eclipes today was partial. All of us at home decided to do some cleaning of the house during the eclipse. Most Indians follow the tradition of not cooking or eating during this period and we followed suit. Had lunch very late in the afternoon and had grilled fruits , vegetables and Paneer (Cottage cheese) for dinner 🙂

This time we used skewers which we ordered online and it definitely made grilling much simpler and faster. I was a little apprehensive about an Electric grill but it is very convenient and we are enjoying the time spent during the grilling process.


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Surya Organic farm , Hyderabad , a partner of Farmizen.

My search for Organic veggies led me to the discovery of Farmizen.

A concept where one can rent a piece of land for growing veggies. All the hard work is done by the Farmer who is a partner of Farmizen. A Plots of 20×30 feet can be rented for Rs2500/-. A variety of veggies are grown and delivered to our home every week.

I rented one such plot and have been receiving veggies every week.

Received these veggies this week.

It’s been more than a month that I have subscribed to Farmizen. The veggies are grown using organic manure and pesticides.

The Farmizen app is very user friendly. Status of the plants in our plot is updated frequently. Updates on watering of the plants, application of pesticides , time for harvesting  etc are posted . We can also request for photographs of the plants in our plot via the app.

A notification is sent via the app about the date of delivery of veggies . Facility to pin the location of our home address in a map is provided in the app.

We can also visit the farm 6 times a month. I have been to the farm thrice and it is nice to see the veggies growing . Love driving to the farm which is close to Himayatsagar lake.

Looking forward to visit again once the monsoons are here.


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Bestest News Ever !! :)

A Bi-Annual checkup is a routine event for diseases like Diabetes , Cardio issues and Cancers.
The last time I got my checkup was in June 2018 . A Bone Marrow Biopsy was done and the Results were great. My Oncologist had said that I need not do the Biopsy on my next visit. He recommended Serum Electrophoresis and Beta 2 Microglobulin tests, which are Blood tests, after 6 months.

This time I delayed the tests for various reasons and gave my blood samples for Serum Electreophoresis and Beta 2 Microglobulin in Jan 2019. As expected ‘, M-Band was not seen !! 🙂
Met my Oncologist with the Reports. He saw the results and said we can stop doing the blood tests too from now onwards :). I had a ? on my face and then he said I can meet him after a year 🙂
Yayyyy , isn’t this the bestest news anyone can ever hear. A Doctor is the only person in this world that we wouldn’t like to meet 🙂 . Everyone wants to stay away from Hospitals and Doctors isn’t it ?!!

I am now in the 8th year after my Stem Cell Transplant for Multiple Myeloma.
Not taking any Allopathic drugs since last 3 years. Taking curcumin and few other herbal supplements since last few years and doing great.
Extremely grateful to the Almighty and my Ayurvedic Doctor who is always there for me. God bless him.
So glad to have an Oncologist who has been supporting and encouraging me all the while.

I have an excellent Support System and I am highly grateful for all the support by the beautiful people I am surrounded with.

So happy and in love with LIFE !!

Happy Valentine’s Day !! 🙂

God Bless everyone with Good Health and lots of Love . Everything else is a Bonus :))


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The Mask

mask cartoon

Nothing shady about the title 🙂 . Nothing to hide 🙂

Am sure I reminded you of ‘The Mask’ and Jim Carrey 🙂

This post is all about how the ‘Mask’ has become one of the most important accessories  during the last 9 months.

My ‘Mask’ is now a constant companion from the moment I step out of the house.

Having struggled with frequent Sore throat problems and dust allergies followed by Antibiotics all these years, I wanted to check if  a Mask would help me stay away from these issues. I invariably end up with a Sore throat if I inhale any kind of dust .

Before I went ahead and bought a mask, I did some research on the internet on the varieties of masks that are available.

Long ago I had read about how an N95 mask can protect the wearer from viruses .

I also learnt the difference between a Respirator and a Surgical Mask.

A Respirator protects the wearer from the environment. Learnt that the N95 Mask is a Respirator.

A Surgical Mask protects the Environment from the wearer of the Mask, so that the wearer of the mask doesn’t transfer any unwanted viruses/bacteria to others.

Bought one N95 Mask that appeared simple , lightweight and comfortable to wear and not too expensive , on Amazon. There are several varieties that one can easily buy online.

Unfortunately I was unable to wear this beyond 5 minutes. Felt suffocated and it was too tight on my face.

simple respirator

The above image is a simple N95 Respirator that I tried.

With the bad experience of wearing an N95 mask , I wanted to try the surgical Mask . If a Surgical Mask can stop letting viruses go out while we breathe/talk then obviously it can stop viruses from getting in too 🙂 . With this conclusion I bought a few normal surgical masks. These are very light and so comfortable to wear. Hardly any suffocation. I liked wearing these even if it meant that I appeared like hospital staff who forgot to remove the mask after leaving the Hospital 🙂

mask.jpg

I now keep a bunch of these in the car seat back pocket.

I began using these when visiting public places like Supermarkets, farmers markets, Malls and Movie theatres . Initially I did feel a little awkward and tried covering my Masked face with my Dupatta/chunni.

A Dupatta/Chunni is like a long scarf worn over the shoulders.

Very soon I felt the Dupatta was restricting my head/facial movements. Stopped using the Dupatta and felt relieved and free. It is not my problem if people are uncomfortable looking at my masked face 🙂 🙂

There are times when I travel through dusty roads and in spite of sitting in a car I felt I should be using a Mask . All the vehicular pollution was making me depressed. I was sure that some of the polluted air was entering the car too. I didn’t want to take any risk of being exposed to any kind of dust.

Very soon I was wearing the Mask everyday on my way to work and back home even while seated in the car :).

I soon started noticing the benefits of wearing a Mask. I haven’t experienced a Sore Throat and Bronchitis issues ever since. It’s been 8 months since I started using a Mask.

I always carry a few Masks in my handbag too. These are disposable Masks which I discard every 2-3 days. Initially I was buying Masks in 10s from the local Pharmacy. Very soon I bought a big box of Disposable ones online and now I don’t have to worry about running out of them. They are very affordable and effective.

I wish more and more people begin using these Masks thereby protecting themselves and also  not transmitting viruses to the environment and those around us.

A lot of men and women in all the cities in India are using Handkerchiefs , Dupattas/ Chunnis to protect themselves from pollution. I sincerely wish that those to see me will be inspired to use these disposable masks  🙂


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My Kitchen Garden

Rains are finally here and I am excited to do some serious gardening. I do not have a lot of space for plants ,but I hope to make maximum use of the available space and will be using containers too. I will also be using home made compost and pesticides. Basically trying to grow the organic way 🙂 .

I got a few Chilli saplings from an Organic Store that I visit often. I was surprised to see a few chilli saplings sprouting on their own in my little patch. A few dried/ripe chillies from my chilli plants in the previous season must have got into the soil and were hiding there till the right moment 🙂

Removed the whole Mint patch that I had and planted fresh stems from a bunch of Mint that I got from the store. The previous patch was getting sparse and started drying up. I harvested the leaves several times during Summer.

My Malabar Spinach is growing well. I grew them from the seeds of a lone plant that I had. I have already harvested the leaves twice and is ready for harvesting again.

I successfully made my first batch of Organic Compost during the recent summer months. I have started using this compost for my plants. Feeling good .

Thankfully my plants are not infected with any pests as of now.

I also put a few pieces of ginger and Turmeric in the soil. Got to wait and see how well they do.

I am also experimenting with Coriander cuttings. Replanted a few root cuttings from a coriander bunch that I got from the store. Growing coriander from seeds is a long and slow process. Hope this trick works though I am not confident it will work. Will probably sow the seeds directly in a couple of days.

I sowed seeds of Bitter gourd , Ridge gourd , Snake gourd and cluster beans . I see that a few seeds of cluster beans have sprouted , the rest haven’t . Don’t really know the reason. Either the seeds are not good or I watered a lot. Will continue to sow them again and again until I succeed.

Also sowed a few seeds of Khatta palak (Hindi) or Chukka Koora (Telugu) .

Will also sow Fenugreek/Methi seeds in a day or two . These seeds sprout real fast.

Watching a seed sprout,  the first leaves , the budding , the flowering , the fruits/veggies growing bigger and finally the harvesting , all the activity makes me more energetic . I feel like I am absorbing Energy from nature. I look forward to the next morning to see how they are growing. There is an underlying hope when you are into Gardening . No wonder my Doctor told me to do some Gardening way back in 2012 🙂 . 

That’s it for now. Will post pics of how these babies are doing , in a few weeks.

 


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To Reveal or not to Reveal

Having been diagnosed with MM in Oct 2011 and come a long way ,  a thought often arises in my mind as to whether I should reveal/discuss my condition with whom I spend a considerable amount of time.

A lot of people around me , at work , friends and relatives already know to some extent. They may not know exactly what I have been through. However my observation is that no one ever asks me any direct questions. Many of them come to know through various channels but prefer not to talk about it. 

Either they dread talking about this topic or they feel they shouldn’t cross a certain limit as health is supposed be a private matter or they don’t start the topic because I don’t encourage such a discussion or people are engrossed with their own stuff.

Whatever be the reason , I am quite comfortable with the way things are happening around me….ignorance is bliss 🙂

I myself have been through similar situations in the past , much before I was diagnosed, when I came across people who were diagnosed with Cancer and I would be terrified to even look at them. So , here I am , having survived Multiple Myeloma and writing from the other side :).

hmmm , what goes around comes around !!  

When someone asks me how I am doing , I give a big smile and tell them ‘I am doing well, thank you’. There are a few confidantes at work, with whom I share information about my tests, my medications etc . I also update my Boss who has a lot of interest in matters related to health / Alternative treatments and gives me some advise too.

There are a few online friends from school and college with whom I feel happy to share the status of my health.

Apart from my parents, brother and sister I do not discuss with any others in the extended family. Of course , hubby is a constant support 🙂

There are times when I feel tempted to share the link to my Blog with everyone at work, extended family and with all my classmates  from school and college. I guess I am not yet ready to openly declare…maybe some other time. I can already sense that a few are staying away from me and it is ok. 

I shouldn’t be thinking too much about who knows and who doesn’t and concentrate more on enjoying the present moment. 

The best part of this blog is I can let out all my feelings and share my MM journey and other random events in my life.

So glad I am finally stable. 

A few readers (MM patients/caregivers) of my Blog get in touch with me and I am more than willing to listen and encourage them. Gives me immense happiness to know that I have made a difference to them. I hope to get more opportunities to do my bit to humanity.

 

Life seems much more meaningful now.

 


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Update on my Bone Marrow Biopsy – M Band not seen !! 23 June 2018

It is one year since I got a Bone Marrow test done.

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I was diagnosed with MM in Oct 2011 and underwent Stem Cell Transplant in Jan 2012. Since then I have been doing the  Bone Marrow Test every six months. In June last year ie June 2017 ,  my Oncologist told me to come back for the test after a year !!. Once a patient crosses five years after a Stem Cell Transplant , the Bone Marrow Test is done once a year. That was the second best thing that happened to me. The best thing to have happened was in Feb 2016 when my Oncologist said I could stop taking Chemo Medications 🙂 .

I have been taking Ayurvedic medications since more than three years and the results are good.

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The Bone marrow sample was taken last week. Reports usually take around 5-6 days . I had been a little nervous while I was waiting for the Reports , though I was confident that all will be fine.

While I was in touch with the Hospital to check if the BMA Reports were ready , I was surprised to see a whatsapp message from my Oncologist after 5 days.

He sent me the Report via whatsapp !! There was no comment from him.

I opened the pdf document and quickly scanned for the words ” M Band ” or ” M Spike”, while my heart was racing. I did find the words ” M Band not seen ” .

Yayyy !!

There was a BIG smile on my face and I immediately called Dr Suresh.

He said ‘Everything is OK’ .

I said ‘Thank You Doctor , when can I meet you’.

He said ” what for ?”

I said ‘I would like to meet you’ 🙂

I then shared the Report via whatsapp with Dr Nitin , Ayurveda . He immediately called me.

He was very happy with what the Reports said.

Met Dr Suresh this morning .

He said ‘we don’t need to do the Bone Marrow Test from now on’. 

That is the greatest thing anyone like me would love to hear 🙂

I blurted ‘What Doctor, how can we stop?!!’

He said ‘just do the Electrophoresis test once every six months. As long as there is no M Band , there is no need to do a Bone Marrow Test’

I was happy with that advise.

Wow , no more piercing of my Sternum. 🙂

He then asked me if I had any other problems.

I asked him if Neuropathy is permanent and was happy to hear that it is reversible and no where it is written that it is permanent.

Sounds good but there has not been any improvement in my condition in all these years.

To alleviate my Neuropathy he recommended Pregabalin instead of Renerve which was advised by a Physician. Renerve does help but my B12 levels are exceeding the limits which not good either. Will try the Pregabalin tablets.

He then told me there are four new drugs for managing MM , with lesser side effects , one of them being Neuropathy. He also said that Bortizomib , the drug that I used , causes Neuropathy. This is good news . 

Its more than three years since I started taking Ayurvedic Medication from Dr Nitin and almost two and half years since I stopped taking Chemo medications. Dr Nitin now wants to reduce my curcumin dosage . However I don’t wish to hurry and plan to reduce gradually.

I also sent my report to Dr Gayatri, who was diagnosed with MM way back in 2002 . She has been a guiding and inspirational force for me since last three years. She had introduced Dr Nitin , Ayurveda to me. She hasn’t been taking Allopathy nor Ayurvedic medications since last several years and is doing well.

When I asked her how she Manages , she tells me that regular Pranayama , Yoga and Meditation do help in healing.

Felt so good talking to the Brave lady who oozes a lot of Energy. She is a God send.

Dr Nitin too had reiterated that Exercise, Pranayama, Yoga and Meditation can correct DNA problems. He insisted that I should be consistent with these practices.

Right now my highest priority is Pranayama, Yoga and Meditation along with Ayurvedic medication , proper diet and regular fasting.

Time to celebrate !!