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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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7th year after my Stem Cell Transplant for Multiple Myeloma

The last six years have been the longest years in my life. Extremely grateful for being given a second chance to tread our lovely blue planet .

Been living each day with gratitude and lots of hope. Doing my best to share my experience with Alternative treatment via this blog. Have been able to manage my condition (Multiple Myeloma) successfully. It’s been 2 years since I stopped Chemo. So far so good. Was able to help and guide other patients with MM who came across my blog and got in touch with me . Gives me immense happiness.

Learnt a lot about the importance of diet , fasting etc for preventing and treating Cancer. Most importantly , I have experienced the Miraculous healing properties of Curcumin , for managing my condition. Curcumin has powerful healing properties which can treat several diseases.

Nothing else in this world is more important than being alive. Everything else is a bonus 🙂 . Yes, it does sound like I am selfish 🙂 . Take utmost care of your health and love yourself a lot. Be healthy so you don’t have to trouble your near and dear ones if you fall sick.

I am so thankful to my Doctors , family , friends , colleagues and other well wishers who have been supporting me throughout.

happy


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Metabolic Profile C – Test/Reports

It’s been three years since I started consulting Dr Nithin, Ayurveda and began taking Ayurvedic Medication for Multiple Myeloma.

He recently advised me to get a test named ‘Metabolic Profile C’ done.

This was the first time I was hearing about this test. 

Checked on the Internet and learnt that it is a package of 137 tests. Here is a link.

https://www.icliniq.com/en_IN/lab-tests-at-home/metabolic/metabolic-profile-c/PROJ1009076

I glanced through the information and guessed/concluded that it is a comprehensive test to check the levels of all the various Minerals and Vitamins in the body.

This test is offered only at Thyrocare diagnostic centers in India.

At the lab , three fasting blood samples were collected and it took 2 days for the reports to be ready. I was surprised to see the bunch of printouts . The Report had 24 pages in all 🙂

Started turning the pages one by one to find status of parameters like Magnesium, copper, Iron, Zinc, Vitamin K , Vitamin A , lipid profile, Glucose , B Vitamins , Vitamin D etc etc .

Almost all the parameters were in the Normal range except for B12 and Total Cholesterol which were just a wee bit more than the normal range. ESR was high as usual.

Sent the scanned copies of the reports by mail to Dr Nithin .  He said that almost all the parameters are normal. 

He also said there is no trace of any cancer. Yayyy !!!

But what are the parameters in this test that help in detecting Cancer ??!

When I checked the above link once again , I also learnt that the test reveals the levels of Amino acids in the body. There are around 20 Amino acids in all . The levels of Amino acids indicates the Metabolism in the body. It is the Mitochondria inside the cells which produce several of these Amino acids . The Protein in our diet is broken down into Amino acids in the gut . Mitochondria is one of the important Organelles inside the Cell and it is the Powerhouse of the cell. Only healthy Mitochondria can produce sufficient Amino acids to maintain a Healthy body. Amino acids are required for each and every function in the body.

Unhealthy Mitochondria are unable to produce sufficient quantities of Amino acids and also release lots of metabolic waste which is the initial stage of Cancer. 

Is there a way to  improve the function of Mitochondria ?

Yes, by Exercise, Intermittent Fasting , exposure to the Sun , reducing consumption of Sugar etc.

Here is what Dr Nithin has to say about the ‘Metabolic Profile test’ , in his own words –

Metabolomics is the latest in understanding the process of Cancer.

Metabolic profile is for detecting the defect in Metabolism by Mitochondria, a powerhouse of the cell , which becomes dysfunctional and causes fermentation on glucose instead of oxidation, causes release of lots of metabolic waste , which is the most initial step in cancer.

If these levels are normal , it indicates good functioning of Mitochondria. Which can be further inferred that Cancer process is being stopped or arrested. “

That was a revelation !!

As per my report , all the Amino acids are within the normal range.

My B12 level is a wee bit on the higher side. I was taking one capsule of Methylcobalamin (a form of B12) every day. Was advised to stop for 6 months.

I will be continuing to take Curcumin, Ashwagandha etc.

 

 

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Celebrated the good news by going to a restaurant and ordered Molten Chocolate cake 🙂 . I usually  avoid eating cakes as the main ingredient is all purpose flour (Maida) .

 

 


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Back to Curcumin from Turmeric

Went for a few routine tests namely CBP , LFT and RFT on 23rd Jan 2018 and noticed that my Globulin Serum had further increased from 3.8 (Nov 2017) to 4.0 . I was a little worried and expressed the same to Dr Nithin , my Ayurvedic Doctor who then changed my medication from Turmeric to Curcumin. I was advised to use Turmeric instead of Curcumin , for a few months during the later part of 2017.

I guess it was too early for me to make the change from Curcumin to Turmeric . Curcumin is an extract from Turmeric and hence more powerful. It is the Curcuminiods in Turmeric which are effective in the activation of Apoptosis (cell death) in the cells.

It is now one month since I changed back to Curcumin. Meanwhile I was down with Sore throat and took Antibiotics during first week of Feb 2018. I discussed with Dr Nithin and he decided to increase the dosage of Curcumin (500mg) from 3 caps / 3 times a day to 4 caps / 3 times a day . Ashwagandha (500mg) was also increased from 2 caps / 2 times a day to 2 caps / 3 times a day.

Its been a month since my last tests and hence went for the routine tests yesterday. The reports were very good. All parameters were normal .

Hb is 11.2

Creatinine is .9

ESR is 34 , not yet in the normal range (0 – 20) . Not too bad , it was 65 last month.

Globulin serum is back to the normal range (1.8 – 3.6) . Reduced from 4 to 3.6 .

This is great news 🙂 . This was something that was worrying me. Feeling very happy now 🙂

yayyy_by_x_yuuya_x-d3aocig
Dr Nithin also told me to do a test named Metabolic profile c .
Awaiting the results of this test.


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Recalling Memories of Dec 2011

memories

It has been 6 years since I underwent Stem Cell Transplant for Multiple Myeloma. It was in Dec 2011 when I was ushered into an isolated , sterilised , spic and span room where I would spend 15 days all alone.

A room where I would be reborn 🙂 , where my healthy Stem cells would be put back into my bloodstream which in turn would produce fresh and pure blood cells.

I spent Christmas (2011) and the New year(2012) in this room . I had the company of Doctors , Nurses and housekeeping staff who were like family and I would look forward to meet them and chat with them.

Felt too weak to sit by the huge glass window which overlooked the front porch of the building . I had to take the help of a nurse to take a short walk around the room.

Spent my waking hours watching my favorite shows on TV. I kept switching between Cooking , Travel and Religious channels .

Each morning my blood samples were taken and I eagerly looked forward to the reports which would arrive in a couple of hours . The counts of various blood cells would reveal how well my Stem cells were functioning.

A lot of yummy food would be served but it was difficult for me to swallow as my digestive system went on a strike 🙂

I patiently waited for each day to pass. My doctor promised me that he will send me home for Sankranti (a Hindu harvest festival which is celebrated around Mid of January every year ).

Since then , each year around December/Jan , I become nostalgic .

I made a lot of resolutions during those days 🙂 , all that I would do and not do. I have been quite successful with most of the do’s and don’ts 🙂

Feeling very blessed and grateful as another memorable year is passing.

 

 

 


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Curcumin : Availability and its affordability by Common man

A lot of research has been carried out on the efficacy of Curcumin for treating various types of Cancers. There are several evidences from all over the world that prove the positive results of using Curcumin . Curcumin is being widely used for treating different Cancers. Not just Cancers but various other chronic  illnesses too.

curcumin caps

I have been using Curcumin capsules for Multiple Myeloma ,since last two and half years with good results .  Been off Chemo since more than one and a half years , on the advise of my Oncologist. I get Curcumin supplements from my Ayurvedic Doctor.  Usually patients are recommended a maximum dosage of around 8gm of Curcumin per day whereas I have been taking 3.5 gms of Curcumin per day. A single capsule of Curcumin , from most brands , contains 400mg of Curcumin extract . I take 3 capsules , thrice a day.

There are several brands selling Curcumin ,which can be bought online. Curcumin supplements are expensive and are out of reach to common man .

There is no way that information about  the healing properties of Curcumin  is known to common man. Most may come across unauthenticated self proclaimed healers or quacks who trap patients .

A lot of information is available on the Internet ,which is accessible only to those who are literate and have belief in Alternative treatments.

Most patients simply give up and accept their fate as soon as they are diagnosed.  The family members/caregivers too fall into the trap thinking it is a one way highway to heaven.

India is one of the largest growers of Turmeric, from which Curcumin is extracted. It is good to know that Turmeric/Curcumin is getting exported and is being sold/consumed all over the world for its medicinal properties.. Unfortunately Indians themselves are not aware of the potency of Turmeric. Though Turmeric is used in almost all recipes in most parts of India, the quantity used is very small and due to its low absorb-ability, the benefits are not being exploited. It is mostly being used as a colouring agent rather than for its medicinal properties. However, it is a fact that the number of cancer patients in India is much less compared to other countries due to regular consumption of Turmeric via their diet.

I began using plain Turmeric after reading a blog by one Ms Margaret from Italy. I was inspired by her success story and started taking Turmeric (higher quantities) from my own kitchen . What followed is an exciting journey which I have chronicled in this blog.

Need of the hour is to give wide publicity so that general public is made aware of the potency of Turmeric in preventing and treating this dreadful disease and other chronic diseases too. Quantity of Turmeric has to be increased in our recipes. Not the store bought turmeric powder but that which is prepared at home from the dried Turmeric root. This  would help a lot in prevention of such diseases.

Extraction of Curcumin from Turmeric involves a complex chemical process . Also Curcumin comprises only 5% of the weight of a Turmeric Root.

The government should subsidize Curcumin so that common man can afford.

It pains a lot  when I  hear that a patient has lost the battle .

If only they had the hope to live and not give up,

If only they were aware of Alternative treatments ,

If only they knew about Curcumin,

If only they had faith in the potency of Curcumin,

If only they had access to a good Ayurvedic practitioner,

If only they could afford it,

they would have been well and alive.

Unfortunately there are too many if’s , which is not a good sign. Too many lives lost in spite of having a solution 😦

As of now , I am able to share my experience  through this blog.

I also share my experience via a Whataspp group which has members who are Cancer Patients / caregivers.

My Oncologist is aware that I am using Curcumin . I requested him to suggest Curcumin to his other patients as well. He himself had recommended Tinospora Cordifolia to me after my Stem Cell Transplant , 6 years ago . This is a natural herb which improves immunity and I continue  taking  this .

I also share my experience with others who are eager to listen and are interested in knowing more about my healing experience.

NGOs can help in spreading the information about Turmeric/Curcumin and should also be able to supply Turmeric/Curcumin to patients who cannot afford.

I am looking forward to the day when everyone is aware of the healing properties of Turmeric/Curcumin and is affordable by one and all .

There is simply no reason why so many lives should be lost.

Most important : It is highly recommended to increase the consumption of Turmeric through the diet, thereby  preventing and managing most of the chronic illnesses.

 


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An update on my condition – Multiple Myeloma

It’s been 4 months since my Oncologist told me that I was ‘Technically Cured’of MM. ( I underwent Stem Cell Transplant also known as Bone Marrow Transplant in Jan 2012)
He had told me to meet him again after one year. I couldn’t believe what I heard. I had a question mark on my face and said ‘One year , Doctor ?’ and he repeated what he said.

Isn’t that the best thing to hear 🙂 .

I had got used to getting CBP, LFT and RFT tests done every month and sometimes once in three months in the last few years, along with a Bone Marrow test every 6 months.

And so, in the back of my head there was this question , what if something goes wrong during this one year. One year is a looong time . I expected he would tell me to get a few tests done regularly like CBP, LFT, RFT and to meet him only if any of the parameters were out of range. But he didn’t say any of that.

In my head I was telling myself that I will get these tests done anyway, even if my Oncologist didn’t tell me to.

So here I am , I just got these tests done after 4 months and the results are out.
Here are the current values of some of the important parameters :
Hb : 11.2 (11 – 16)
Creatinine : 1.0 (0.6 – 1.0)
Globulin Serum : 3.8 (1.8 – 3.6)
ESR : 60 (0-20)

I don’t intend to meet my Oncologist with the reports as I didn’t find too much abnormality in the reports nor any change in my general health condition.

I sent my reports via whatsapp to my Ayurvedic doctor. He felt the numbers were normal . I expressed my concern about ESR being high and was told that it will not reduce so soon. There were times when the ESR value was much lesser , around 30 sometimes. High ESR implies greater inflammation in the body. Will work on that.

He wanted to reduce my curcumin intake from 3 caps / 3 times a day to 2 caps / 3 times a day ( Each capsule contains 400 mg of curcumin) . This is actually good news. My doctor has more confidence on me than I have in myself . But , I was not ready and in no hurry to reduce the dosage  , so told him I would like to continue 3 caps/ 3 times a day for few more months. So glad he agreed 🙂 . I still feel like depending on Curcumin for some more time.

Some day I should be off Curcumin too and I am looking forward to the day when I will be 100% independent of any kind of support . The day when my mind and my body will be in sync :))

That’s all for now.
Will get the tests done again after another 4 months.

Life will go on while Fasting , Pranayama, Meditation , Diet , Exercise will continue to be a priority.

happiness

 

~Sarve Janaha Sukhino Bhavanthu ~

 


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Change in Complexion of the skin due to Chemotherapy 

A young woman from Kerala, India , came across my blog a few months ago. Her Mom is taking Chemotherapy along with Ayurvedic Medication , for Multiple Myeloma. I had received a private message from her and we exchanged information over the phone.

A few days ago she messaged me on whatsapp and asked if my complexion had changed because of taking Ayurvedic medication. We had discussed about my Ayurvedic Medication too during our previous chats.

I then told her that the change is not because of Ayurvedic Medication but due to Chemo.

Here is my own experience :

After my Bone Marrow Transplant for Multiple Myeloma  in Jan 2012, I came home and looked at myself in a full length mirror. I just couldn’t believe what I saw . I was horrified. I almost felt ashamed of my appearance. I lost 10 kgs weight and my skin was much darker. I was definitely glad and excited to be back home , alive 🙂 . None of my family members including my little nieces and nephews , uttered a word about my appearance :). I still wonder why they didn’t . Poor things would not have even recognized me. I was bald , wearing a scarf , with a dark complexion and had lost a lot of weight. 

There was a small mirror in my room at the hospital but somehow I didn’t notice that the skin was turning darker day by day. I was in the hospital for 20 days and the other side effects overpowered this effect on my skin 🙂 . 

During the next visit to my Oncologist I asked about my complexion too, among many other queries. I was told that I should not be surprised if my nails start turning black very soon. He told me that my skin is reacting to UV light and I can try and avoid being in places with lot of light. Whereas I wanted to get some Vitamin D by exposing  my skin to the Sun . This was more important to me for strengthening my bones. The complexion thing was a very minor issue among the other issues that I was experiencing just after the BMT.  I just wanted to be alive.

Over a few months the complexion lightened just a bit . The whole nail did not grow to  a dark shade but I had one or two stripes of a dark shade on the nails . The nails slowly got back to normalcy but I can still see a pale grey stripe on a couple of nails even now.

It was only after I stopped all Chemo and started Ayurvedic Medication that my complexion slowly got lighter. I stopped Chemo in Feb 2016 . I guess I am 50% back to my original complexion now.

I really don’t know if everyone who takes Chemo for Multiple Myeloma has this side effect.

 

Finally , it is important to be grateful that one is alive and nothing else matters . Work towards improving your Health , mentally and physically. Have patience and read success stories of  other patients , yes there are several of them all over the world. 

the secret