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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Lock-Down Dairies – 22 May 2020 : Update on my Multiple Myeloma, my Curry leaves harvest

Been a while since I updated on my Multiple Myeloma.

This is the 9th year after my Stem Cell Transplant. I have been taking only Ayurvedic Medication for the last 4 years.

There are other detailed posts in the past where I wrote all about in detail.

I am continuing to take Circumin, Ashwagandha , Satavari , Tinaspora Cordifolia as per the advise of my Ayurveda Doctor.

I also take few Allopathy medications like Folvite ( for better absorption of Iron), Renerve (for peripheral Neuropathy), Antoxid HC (Multivitamins) and Feburic 20 (to regulate Uric acid) .

Apart from the above , I also have been following the lifestyle prescribed by ‘Natural Lifestyle’ , since 4 months. I have lost some weight due to the restricted diet. I do feel healthy otherwise. Just that I can’t physically exert myself a lot. Able to manage quite well even during the lock-down period doing all household chores with support from hubby and son 🙂

I did the routine Blood tests 2 months ago (just before the lock-down) and the reports say that all is well.

However, it is 1 year 4 months since I did the Bone Marrow test. I feel it may not be necessary as I feel good and my routine tests including Serum Globulin levels were normal in the recent tests.

I am also back to work in spite of all the restrictions and risks.

I am dependent on my driver whenever . Doing my best to ensure that my Driver is also healthy. Provided Masks, Face Shield, Sanitizer , Liquid soap and gave him instructions on maintaining social distance and washing hands frequently.

Getting used to co-exist with the C-virus. With a little care and attention it should be possible to deal with it.

Harvesting curry leaves in my tiny garden :

I was all the while assuming that the curry leaf plant should be allowed to grow as much as possible before we start harvesting the leaves. I recently learnt that the branches should be cut frequently so as to encourage further growth of new stems.

So, I decided to cut off one of the biggest stems today. Here it is-

I then separated all the leaves, washed them well and dried them well.

This is usually how i prepare curry leaves before i pack them in an airtight container and store them in the refrigerator.

These leaves are going to last me more than a week. Feels so good to be able to grow your own food ,that too organically grown 🙂

~ Stay safe ~


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Lock-Down Dairies – 9 May 2020 : My ‘Natural Lifestyle’ Diet and Daily routine

Time to share the exact diet that I have been following since 15 Jan 20.

This is the diet prescribed by ‘Natural Lifestyle’ lead by Acharya Mohan Gupta.

BTW, you can get all the details of this organisation at http://naturallifestyle.in/

The Day starts with a few yoga stretches that I am comfortable doing .

Followed by Pranayama and Meditation.

Use the Cotton Patti for 30 minutes.

Coming to my Diet –

Pre Breakfast : 8am

The first meal of the day is a glass of juice made from Ash Gourd. I make the juice using a juicer and it hardly takes 5 min.

Breakfast : 10am

A plate full of Raw vegetables like cucumber, tomatoes, carrots, Beetroot etc. along with a fist full of coconut slices.

Lunch : 1-2 pm

2 Composite Rotis with lots of Curry.

This is the only cooked meal of the day.

Tea time : 4-5pm

If hungry one can eat coconut slices , drink coconut water or eat a fruit.

5.30pm

Use Cotton Patti for 30mins

Dinner : 6-7 pm

A plate full of fruits . Any one type of fruit may be eaten .

Appears very meagre compared to the ind of food that we usually eat. Thats the reason for ending up with numerous diseases.

It is difficult initially but when we have to choose between food or health then the answer is very clear.

~Om Shanthi~


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Lock-Down Dairies – 8 May 20 : My ‘Natural Lifestyle’ – Results of my Blood tests (Part – 3)

The results of my Blood Reports were sent to my mail id and i quickly opened the pdf file which had almost 12 pages.

As I was scrolling page by page , I was surprised to see my results unfold.

My Hb crossed 12 for the first time since my transplant.

My Thyroid levels were back to normal.

My ESR level for the first time was showing 26 . It was always more than 50 or 60

My Uric acid levels stabilised.

My Creatinine was always at 1 and now reduced to 0.9

My B12 was in the normal range too . I do take a supplement daily.

My Vitamin D3 levels was in the medium range.

Most importantly my Serum Globulin was perfect.

Woww , I couldn’t believe what I was seeing. All this with the simple diet and lifestyle that I was following for two and half montths. The only ‘side effect’ of the new lifestyle was that I lost 5 kgs in those two and half months.

I was prepared to look skinnier and be healthy rather then be sick and look chubbier.

I then decided to stop the medicine I was taking for Thyroid. I also started taking only one capsule of Shallaki for knee pains instead of two.

I continued the same diet and still continuing and intend to continue for ever.

I wrote a mail to Sarita ji and gave her my feedback and requested her to show my results to Acharya ji. She replied after a few days and said I should continue the same diet and I can continue to ask any further doubts.

I am allergic to dust and once during this period I had mild cough and bronchitis attack . Before I started following this lifestyle I used to take a herbal powder for my cough and take allopathy for the Bronchitis. (Much before I started Ayurveda medicines , I would take Antibiotics very frequently) . Whereas this time i did not take the herbal powder too , instead , as recommended by this lifestyle , I went on a liquid diet (White Chart) for 2 days and used the ‘Patti’ for four times each day and did the Enema 2 times each day. I also put my feet in warm water at night. I was miraculously fine on the third day 🙂

Kept watching the videos by Acharya Mohan ji and also the feedback given by many of the followers of this lifestyle. Very positive feedback given by those who had been suffering from Hypertension, Diabetes, Thyroid, Asthma, Constipation, Skin problems etc. I too have finally experienced the Miracles of a ‘Natural Lifestyle’ and hence wanted to share with all.

I feel quite energetic and continue to do simple chores like cooking , gardening and going to work.

I have been taking Ayurveda Medication like Curcumin, Ashwagandha , Tinaspora Cordifolia , Satavari for Multiple Myeloma since last 5 years and continuing them even after I started following ‘ Natural Lifestyle’ . I dont think I can stop or reduce these right now, but hopefully in future I should be able to reduce the dosage.

Will share my actual diet (Yellow Chart) and daily routine in my next post :))

Till then , Take care and Stay Safe !!


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My Journey through 2018

As I successfully complete 7yrs after my Stem Cell Transplant (In December 2011) for Multiple Myeloma , I feel blessed and would like to summarize my journey through 2018.

One of the best things to happen this year is that I just had one bout of severe cough and cold and that was the only time I took Antibiotics during the whole year. There were a few times when a cough had just begun and thanks to my Ayurvedic Doctor who gave me a powder which instantly controlled the cough. He advised me to never ever take Antibiotics for a cough. Hitherto I was meeting the ENT Specialist once every few months and I was popping Antibiotics each time. Am sure my ENT Doctor is missing me and wondering what happened to me :)). I have also begun using a mask when I venture out , especially Malls, Supermarkets etc . These masks are a boon. I have also written a post about my adventures with the Mask in this Blog :)

A few months ago I had severe pain and swelling in my right knee . I was advised to take pain killers and antibiotics by an orthopedic. When I discussed with my Ayurvedic Doctor , he gave me Wokvel and said this will prevent any further issue in my knees. My knees are doing great now. I do a few exercises and also give a little oil massage to my knees before sleeping. So far so good.

Visited my Grannys Village near Nellore twice this year. I always look forward to visiting this tiny village.

A wish to visit Pondicherry and Kanchipuram was fulfilled. Didn’t expect to visit Chidambaram and also go on a boat ride among the Mangroves in Pichavaram .

My Uric acid levels have been within the limits but are on the higher side. Currently drinking lots of water, eating cucumbers and gave up meat and eggs.

A Biannual visit to my Oncologist is pending . Did a few blood tests recently and my Globulin Serum levels are well within the normal range.

On the advise of some beautiful people I have incorporated a few activities in my daily routine. I now recite the ‘Vishnu Sahasranamam’ every morning . Takes 25 minutes each morning. The vibrations generated by chanting are supposed to help the body and mind.

I also started doing a ‘Colour Meditation’ advised by my Mentor in my MM journey . This 15 minute guided Meditation by Brahma Kumaris (Youtube) has become an important part of my daily routine in the Morning and Evening. Meditation helps in healing .

Pranayama twice a day is a must. Takes 20 minutes each time. I walk for 10 minutes a few times a week. Some popular Yoga Masters claim that a few hours of Bhastrika and Anulom Vilom Pranayama twice a day can stop Cancer as Cancer cells cannot survive in an Oxygen rich environment. I strongly advise all Survivors to do anything and everything to put a check on the cells.

Having a comfortable time at work which keeps me busy for 9 hours everyday. Thanks to my wonderful colleagues.

Met a lot of friends from school and college all through the year. Attended several events hosted by family and friends like Weddings, house warming , Baby Showers etc.

My spiritual journey continues and I am glad to have come across Sri Aurobindo and The Mother, thanks to our recent trip to Pondicherry. I had bought a few books from the library in Aurobindo Ashram on Healing.
Started reading these books and found great insights into how the Mind/Thoughts can heal a person. Very minute details are discussed which are very practical and can be implemented easily so as to get healed. Through these books am able to appreciate the Spiritual teachings  of Sri Aurobindo and The Mother.
‘Intergrated Healing’ is one book which I will review once I am done reading.

Nice to see that the hits on my Blog are increasing. I get visitors from small unknown countries too. This motivates me to post more and hopefully the posts motivate more people.

Wishing all the readers of my Blog a Healthy and Peaceful 2019 !!


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To Reveal or not to Reveal

Having been diagnosed with MM in Oct 2011 and come a long way ,  a thought often arises in my mind as to whether I should reveal/discuss my condition with whom I spend a considerable amount of time.

A lot of people around me , at work , friends and relatives already know to some extent. They may not know exactly what I have been through. However my observation is that no one ever asks me any direct questions. Many of them come to know through various channels but prefer not to talk about it. 

Either they dread talking about this topic or they feel they shouldn’t cross a certain limit as health is supposed be a private matter or they don’t start the topic because I don’t encourage such a discussion or people are engrossed with their own stuff.

Whatever be the reason , I am quite comfortable with the way things are happening around me….ignorance is bliss 🙂

I myself have been through similar situations in the past , much before I was diagnosed, when I came across people who were diagnosed with Cancer and I would be terrified to even look at them. So , here I am , having survived Multiple Myeloma and writing from the other side :).

hmmm , what goes around comes around !!  

When someone asks me how I am doing , I give a big smile and tell them ‘I am doing well, thank you’. There are a few confidantes at work, with whom I share information about my tests, my medications etc . I also update my Boss who has a lot of interest in matters related to health / Alternative treatments and gives me some advise too.

There are a few online friends from school and college with whom I feel happy to share the status of my health.

Apart from my parents, brother and sister I do not discuss with any others in the extended family. Of course , hubby is a constant support 🙂

There are times when I feel tempted to share the link to my Blog with everyone at work, extended family and with all my classmates  from school and college. I guess I am not yet ready to openly declare…maybe some other time. I can already sense that a few are staying away from me and it is ok. 

I shouldn’t be thinking too much about who knows and who doesn’t and concentrate more on enjoying the present moment. 

The best part of this blog is I can let out all my feelings and share my MM journey and other random events in my life.

So glad I am finally stable. 

A few readers (MM patients/caregivers) of my Blog get in touch with me and I am more than willing to listen and encourage them. Gives me immense happiness to know that I have made a difference to them. I hope to get more opportunities to do my bit to humanity.

 

Life seems much more meaningful now.

 


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Update on my Bone Marrow Biopsy – M Band not seen !! 23 June 2018

It is one year since I got a Bone Marrow test done.

————-

I was diagnosed with MM in Oct 2011 and underwent Stem Cell Transplant in Jan 2012. Since then I have been doing the  Bone Marrow Test every six months. In June last year ie June 2017 ,  my Oncologist told me to come back for the test after a year !!. Once a patient crosses five years after a Stem Cell Transplant , the Bone Marrow Test is done once a year. That was the second best thing that happened to me. The best thing to have happened was in Feb 2016 when my Oncologist said I could stop taking Chemo Medications 🙂 .

I have been taking Ayurvedic medications since more than three years and the results are good.

—————

The Bone marrow sample was taken last week. Reports usually take around 5-6 days . I had been a little nervous while I was waiting for the Reports , though I was confident that all will be fine.

While I was in touch with the Hospital to check if the BMA Reports were ready , I was surprised to see a whatsapp message from my Oncologist after 5 days.

He sent me the Report via whatsapp !! There was no comment from him.

I opened the pdf document and quickly scanned for the words ” M Band ” or ” M Spike”, while my heart was racing. I did find the words ” M Band not seen ” .

Yayyy !!

There was a BIG smile on my face and I immediately called Dr Suresh.

He said ‘Everything is OK’ .

I said ‘Thank You Doctor , when can I meet you’.

He said ” what for ?”

I said ‘I would like to meet you’ 🙂

I then shared the Report via whatsapp with Dr Nitin , Ayurveda . He immediately called me.

He was very happy with what the Reports said.

Met Dr Suresh this morning .

He said ‘we don’t need to do the Bone Marrow Test from now on’. 

That is the greatest thing anyone like me would love to hear 🙂

I blurted ‘What Doctor, how can we stop?!!’

He said ‘just do the Electrophoresis test once every six months. As long as there is no M Band , there is no need to do a Bone Marrow Test’

I was happy with that advise.

Wow , no more piercing of my Sternum. 🙂

He then asked me if I had any other problems.

I asked him if Neuropathy is permanent and was happy to hear that it is reversible and no where it is written that it is permanent.

Sounds good but there has not been any improvement in my condition in all these years.

To alleviate my Neuropathy he recommended Pregabalin instead of Renerve which was advised by a Physician. Renerve does help but my B12 levels are exceeding the limits which not good either. Will try the Pregabalin tablets.

He then told me there are four new drugs for managing MM , with lesser side effects , one of them being Neuropathy. He also said that Bortizomib , the drug that I used , causes Neuropathy. This is good news . 

Its more than three years since I started taking Ayurvedic Medication from Dr Nitin and almost two and half years since I stopped taking Chemo medications. Dr Nitin now wants to reduce my curcumin dosage . However I don’t wish to hurry and plan to reduce gradually.

I also sent my report to Dr Gayatri, who was diagnosed with MM way back in 2002 . She has been a guiding and inspirational force for me since last three years. She had introduced Dr Nitin , Ayurveda to me. She hasn’t been taking Allopathy nor Ayurvedic medications since last several years and is doing well.

When I asked her how she Manages , she tells me that regular Pranayama , Yoga and Meditation do help in healing.

Felt so good talking to the Brave lady who oozes a lot of Energy. She is a God send.

Dr Nitin too had reiterated that Exercise, Pranayama, Yoga and Meditation can correct DNA problems. He insisted that I should be consistent with these practices.

Right now my highest priority is Pranayama, Yoga and Meditation along with Ayurvedic medication , proper diet and regular fasting.

Time to celebrate !!


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7th year after my Stem Cell Transplant for Multiple Myeloma

The last six years have been the longest years in my life. Extremely grateful for being given a second chance to tread our lovely blue planet .

Been living each day with gratitude and lots of hope. Doing my best to share my experience with Alternative treatment via this blog. Have been able to manage my condition (Multiple Myeloma) successfully. It’s been 2 years since I stopped Chemo. So far so good. Was able to help and guide other patients with MM who came across my blog and got in touch with me . Gives me immense happiness.

Learnt a lot about the importance of diet , fasting etc for preventing and treating Cancer. Most importantly , I have experienced the Miraculous healing properties of Curcumin , for managing my condition. Curcumin has powerful healing properties which can treat several diseases.

Nothing else in this world is more important than being alive. Everything else is a bonus 🙂 . Yes, it does sound like I am selfish 🙂 . Take utmost care of your health and love yourself a lot. Be healthy so you don’t have to trouble your near and dear ones if you fall sick.

I am so thankful to my Doctors , family , friends , colleagues and other well wishers who have been supporting me throughout.

happy