Shutterbug's Blog

Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Status update on my MM : 23 Jan 2018

Been a while since I updated my status wrt MM.

Got the CBP , LFT and RFT tests done a couple of days ago.

All renal parameters are fine. Potassium , Glucose , TLC are also within normal ranges.

ESR : 51 ( This is expected , 0-20 is the normal range)

Hb : 10.6 (was 11 in November 2017 )

Globulin Serum : 4.0 (increased from 3.8 in November, normal values are between 1.8 and 3.6 )

This is a cause of concern.

Spoke to my Ayurvedic Doctor who felt there is nothing to be worried about. However I am not comfortable and asked him if I can increase the dosage to 3 capsules three times a day. He actually wants to reduce my dosage if possible. But I am not yet comfortable reducing the dosage right now.

I have been observing a little dip in my energy levels and was also feeling cranky during the last one month.

I had been taking 3 caps of Curcumin for almost 2 and half years since May 2015. All was well during this period and hence a few months back I was put on Turmeric. But the tests in November 2017 revealed that Globulin Serum increased to 3.8 . I was back on Curcumin 500mg 2 Capsules three times a day in December 2017. With the latest reports I feel the dosage of Curcumin has to be further increased .

Glad he agreed and I am back to my original dosage of 3 capsules of Curcumin 500mg three times a day. I will continue to take Ashwagandha , Tinospora Cordifolia , Satavari along with Curcumin . I am hopefull that my counts will jump back to normal very soon.

I shared the reports of my results with a confidante at work. She knows a lot about me and my style of working and feels that I have been exerting myself at work and it is better that I slow down a bit šŸ™‚ . Will do something about this .

In my next set of tests after a month I will be including tests for Vit D , B12 , Uric acid and Calcium levels.

That’s all for now.

Time to take loong deeep breaths and relax :))


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Raw TurmericĀ Vs Turmeric powder

I am in love with Turmeric, the Golden spice. A lot of research has been done on the health benefits of Turmeric and a lot of people the world over are experiencing positive results.

My being alive on this planet is primarily due to Turmeric.

Turmeric is widely being used to treat several illnesses from minor to major chronic illnesses of the body and the mind. There is a lot of information on the Internet.

Everyone is aware that prevention is better than cure but how many actually take the effort to be healthy.Ā  We don’t even know what to do to prevent illnesses. With the kind of diet and pollution levels ,most people should be worried about ending up with some kind of illness, but are clueless as to how to prevent.

By consuming Turmeric we can greatly reduce and even delay the probability of occurrence of illnesses.

Almost all Indians consume Turmeric via their food . Turmeric powder is one of the key ingredients in most Indian recipes. However , the quantity and quality of the Turmeric powder that is used should be increased so as to get the maximum benefit.

Turmeric can be used in the form of a powder or as raw turmeric. It is preferable to use Raw Turmeric .

The store bought powders may be adulterated. It is best to prepare the powder at home using dried Turmeric root. First crush the root into smaller pieces and then grind it in your mixer grinder.

It is best if you can get hold of raw Turmeric root. You can also grow it in your garden.

Here is a link that tells you why –

https://www.turmericforhealth.com/turmeric-queries/7-reasons-why-raw-turmeric-maybe-better-than-powder#rawturmeric

This website has a lot of information on the health benefits of Turmeric.

Hope you too will benefit from this Golden spice.


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Recalling Memories of Dec 2011

memories

It has been 6 years since I underwent Stem Cell Transplant for Multiple Myeloma. It was in Dec 2011 when I was ushered into an isolated , sterilised , spic and span room where I would spend 15 days all alone.

A room where I would be reborn šŸ™‚ , where my healthy Stem cells would be put back into my bloodstream which in turn would produce fresh and pure blood cells.

I spent Christmas (2011) and the New year(2012) in this room . I had the company of Doctors , Nurses and housekeeping staff who were like family and I would look forward to meet them and chat with them.

Felt too weak to sit by the huge glass window which overlooked the front porch of the building . I had to take the help of a nurse to take a short walk around the room.

Spent my waking hours watching my favorite shows on TV. I kept switching between Cooking , Travel and Religious channels .

Each morning my blood samples were taken and I eagerly looked forward to the reports which would arrive in a couple of hours . The counts of various blood cells would reveal how well my Stem cells were functioning.

A lot of yummy food would be served but it was difficult for me to swallow as my digestive system went on a strike šŸ™‚

I patiently waited for each day to pass. My doctor promised me that he will send me home for Sankranti (a Hindu harvest festival which is celebrated around Mid of January every year ).

Since then , each year around December/Jan , I become nostalgic .

I made a lot of resolutions during those days šŸ™‚ , all that I would do and not do. I have been quite successful with most of the do’s and don’ts šŸ™‚

Feeling very blessed and grateful as another memorable year is passing.

 

 

 


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A write-up on ‘Evidence Based Ayurveda Treatment & Diet for Cancer’ by Dr Nitin Kochar, M.D , Ayurveda

Here is an informative write-up by Dr Nitin , M.D. Ayurveda . I have been consulting Dr Nitin and taking his Medication since more than two and half years for Multiple Myeloma.

Thanks to his advise and medication I am free from Chemo since one and half year.

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Here is the link to the article :

https://www.practo.com/healthfeed/evidence-based-ayurveda-treatment-diet-for-cancer-30780/post

In the writeup , Dr Nitin has written all about the root cause of Cancer and how Ayurveda can help in combating the disease. He also answers some of the FAQs on ChemotherapyĀ  Vs Ayurveda.

Here it is –

Frequently asked queries ?

1)Ā Are there any steroids in the Herbal medicines –Ā No, we do not do such kind of unscrupulous or non ethical practice. My drugs can be tested and subjected to any kind of test for that matter.Ā 

2)Ā Are these drugs safe during Chemotherapy-Ā There are certain reports, published in good journals, which has proven good effect of chemotherapy when combined with herbal treatment. ( Care to be taken that herbal treatment should be of standardized quality and should not be given on the day of injectable chemotherapy, rest it can be given. It also depends of stage and type of the cancer, so final decision to be taken only after discussing every pros and cons) . There are various clinical studies indicating that if standardized herbal preparations of Curcumin, Ashwagandha are given along with chemotherapy, results are better. Many chemo resistant cancers respond very well when supplemented with Curcumin , Ashwagandha & Tinospora cordifolia.Ā 

3)Ā Can herbal therapy replace or avoid chemotherapy– No, one should follow complete modern protocol as it is. Herbal treatment is mainly given to as chemo adjuvant to improve the immunity and mitochondrial function as stated above.

4)Ā Can Ayurveda treatment avoid surgery and radiation-Ā All of you will be surprised to read the fact that, in Ayurveda, which was written 3000 years B.C., it is clearly mentioned that, first line of treatment of Cancer is to surgically remove it and then to ” Burn” the margins, this concept is similar to today’s modern protocol of Surgery followed by Radiation. So any tumor , if operable, should be removed promptly by an expert Onco-Surgeon.Ā 

5)Ā What is Chemo prevention ? Ā This term was coined by Dr Michel Sporm, in 1976. Chemopreventives are the drugs, natural or Synthetic , which have potential to Reverse , Suppress and or Prevent further growth of cancer. I advise various such Chemopreventive herbs and ways to many normal people and also to cancer patients.

 

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I am extremely grateful to Dr Nitin and wish that many more will benefit from his expertise.

In my Blog I have chronicled my journey , experience and progress with Alternative Treatment.

 

~~ Have a good Day !!

 

 

 


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Curcumin : Availability and its affordability by Common man

A lot of research has been carried out on the efficacy of Curcumin for treating various types of Cancers. There are several evidences from all over the world that prove the positive results of using Curcumin . Curcumin is being widely used for treating different Cancers. Not just Cancers but various other chronicĀ  illnesses too.

curcumin caps

I have been using Curcumin capsules for Multiple Myeloma ,since last two and half years with good results .Ā  Been off Chemo since more than one and a half years , on the advise of my Oncologist. I get Curcumin supplements from my Ayurvedic Doctor.Ā  Usually patients are recommended a maximum dosage of around 8gm of Curcumin per day whereas I have been taking 3.5 gms of Curcumin per day. A single capsule of Curcumin , from most brands , contains 400mg of Curcumin extract . I take 3 capsules , thrice a day.

There are several brands selling Curcumin ,which can be bought online. Curcumin supplements are expensive and are out of reach to common man .

There is no way that information aboutĀ  the healing properties of CurcuminĀ  is known to common man. Most may come across unauthenticated self proclaimed healers or quacks who trap patients .

A lot of information is available on the Internet ,which is accessible only to those who are literate and have belief in Alternative treatments.

Most patients simply give up and accept their fate as soon as they are diagnosed.Ā  The family members/caregivers too fall into the trap thinking it is a one way highway to heaven.

India is one of the largest growers of Turmeric, from which Curcumin is extracted. It is good to know that Turmeric/Curcumin is getting exported and is being sold/consumed all over the world for its medicinal properties.. Unfortunately Indians themselves are not aware of the potency of Turmeric. Though Turmeric is used in almost all recipes in most parts of India, the quantity used is very small and due to its low absorb-ability, the benefits are not being exploited. It is mostly being used as a colouring agent rather than for its medicinal properties. However, it is a fact that the number of cancer patients in India is much less compared to other countries due to regular consumption of Turmeric via their diet.

I began using plain Turmeric after reading a blog by one Ms Margaret from Italy. I was inspired by her success story and started taking Turmeric (higher quantities) from my own kitchen . What followed is an exciting journey which I have chronicled in this blog.

Need of the hour is to give wide publicity so that general public is made aware of the potency of Turmeric in preventing and treating this dreadful disease and other chronic diseases too. Quantity of Turmeric has to be increased in our recipes. Not the store bought turmeric powder but that which is prepared at home from the dried Turmeric root. ThisĀ  would help a lot in prevention of such diseases.

Extraction of Curcumin from Turmeric involves a complex chemical process . Also Curcumin comprises only 5% of the weight of a Turmeric Root.

The government should subsidize Curcumin so that common man can afford.

It pains a lotĀ  when IĀ  hear that a patient has lost the battle .

If only they had the hope to live and not give up,

If only they were aware of Alternative treatments ,

If only they knew about Curcumin,

If only they had faith in the potency of Curcumin,

If only they had access to a good Ayurvedic practitioner,

If only they could afford it,

they would have been well and alive.

Unfortunately there are too many if’s , which is not a good sign. Too many lives lost in spite of having a solution šŸ˜¦

As of now , I am able to share my experienceĀ  through this blog.

I also share my experience via a Whataspp group which has members who are Cancer Patients / caregivers.

My Oncologist is aware that I am using Curcumin . I requested him to suggest Curcumin to his other patients as well. He himself had recommended Tinospora Cordifolia to me after my Stem Cell Transplant , 6 years ago . This is a natural herb which improves immunity and I continueĀ  takingĀ  this .

I also share my experience with others who are eager to listen and are interested in knowing more about my healing experience.

NGOs can help in spreading the information about Turmeric/Curcumin and should also be able to supply Turmeric/Curcumin to patients who cannot afford.

I am looking forward to the day when everyone is aware of the healing properties of Turmeric/Curcumin and is affordable by one and all .

There is simply no reason why so many lives should be lost.

Most important : It is highly recommended to increase the consumption of Turmeric through the diet, therebyĀ  preventing and managing most of the chronic illnesses.

 


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Recipe for Treating Cancer

All of us have come across mails/posts via mails/social media about effective methods to treat Cancer. Being a patient myself and having researched the Internet for a cure , I wanted to share my thoughts on these remedies .

Once a person is diagnosed with cancer and the word spreads , they receive suggestions from family, friends , colleagues and other well wishers about various Alternative treatments.

It is up to the individual to believe in the methods that are being followed by other patients to heal themselves. Once they have faith in these treatments , they can choose from the available options based on their conviction and then follow those particular remedies. There is no single recipe that is suitable or preferred by all.

Several ingredients are available to make a great Recipe to treat Cancer. Here are some that I would like to share from my own experience :

  • Avoid sugar
  • Exercise/Yoga
  • Reduce consumption of carbohaydrates like Maida / All purpose flour .All bakery products to be eliminated from the diet.
  • Avoid acidic foods and increase intake of alkaline foods : More of fruits and vegetables and less of meat , caffeine etc
  • Drinking lemon juice
  • Drinking wheat grass juice
  • Doing pranayama : Systematic Deep breathing
  • Meditate
  • Take Herbal supplements like ashwagandha and curcumin (very effective)
  • Eat lots of immunity boosting foods.
  • Reduce stress
  • Getting more of the sunshine vitamin (vitamin D) : check your Vitamin D levels and take supplements as advised by your physician and increase your exposure to the sun.
  • Check your Vitamin B12 levels and take supplements if required.
  • Include probiotics : Include Curd / Yoghurt in the diet
  • Juicing
  • Fasting
  • Replace refined oils with cold pressed oils
  • Use clarified butter . Also known as Ghee . Cow Ghee is the best.
  • Avoid all processed foods.
  • Stop drinking and smoking.
  • Respect every Cell and Organ in your body .
  • Forgive yourself , forgive others, love yourself.
  • Learn to say NO.
  • Pursue a hobby.
  • Read success stories on the Internet.
  • Subscribe to some motivational and fun stuff on various social media on the Internet.
  • Be Grateful for what you are blessed with.

Choose from the above as per your convenience and belief. Read up on the Internet about those which appeal to you. Follow the method strictly.

Continue your Chemo medication along with the above.

I have been doing my best to follow all the above.

It is all about maintaining a Healthy Body and Mind by eliminating foods that feed Cancer cells and including foods that help in the Apoptosis (destruction) of the Cancer cells.

Have faith and hope that you will get healed.

And Lo ! you will get healed.

With all the available methods there is no reason why any form of cancer cannot be eliminated from this planet. There is absolutely no reason why anyone should lose the battle.

 

“If you think you can or you think you can’t , you are always Right – Henry Ford “.

 

 


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An update on my condition – Multiple Myeloma

It’s been 4 months since my Oncologist told me that I was ‘Technically Cured’of MM. ( I underwent Stem Cell Transplant also known as Bone Marrow Transplant in Jan 2012)
He had told me to meet him again after one year. I couldn’t believe what I heard. I had a question mark on my face and said ‘One year , Doctor ?’ and he repeated what he said.

Isn’t that the best thing to hear šŸ™‚ .

I had got used to getting CBP, LFT and RFT tests done every month and sometimes once in three months in the last few years, along with a Bone Marrow test every 6 months.

And so, in the back of my head there was this question , what if something goes wrong during this one year. One year is a looong time . I expected he would tell me to get a few tests done regularly like CBP, LFT, RFT and to meet him only if any of the parameters were out of range. But he didn’t say any of that.

In my head I was telling myself that I will get these tests done anyway, even if my Oncologist didn’t tell me to.

So here I am , I just got these tests done after 4 months and the results are out.
Here are the current values of some of the important parameters :
Hb : 11.2 (11 – 16)
Creatinine : 1.0 (0.6 – 1.0)
Globulin Serum : 3.8 (1.8 – 3.6)
ESR : 60 (0-20)

I don’t intend to meet my Oncologist with the reports as I didn’t find too much abnormality in the reports nor any change in my general health condition.

I sent my reports via whatsapp to my Ayurvedic doctor. He felt the numbers were normal . I expressed my concern about ESR being high and was told that it will not reduce so soon. There were times when the ESR value was much lesser , around 30 sometimes. High ESR implies greater inflammation in the body. Will work on that.

He wanted to reduce my curcumin intake from 3 caps / 3 times a day to 2 caps / 3 times a day ( Each capsule contains 400 mg of curcumin) . This is actually good news. My doctor has more confidence on me than I have in myself .Ā But , I was not ready and in no hurry to reduce the dosageĀ  , so told him I would like to continue 3 caps/ 3 times a day for few more months. So glad he agreed šŸ™‚ . I still feel like depending on Curcumin for some more time.

Some day I should be off Curcumin too and I am looking forward to the day whenĀ I will be 100% independent of any kind of support . The day when my mind and my body will be in sync :))

That’s all for now.
Will get the tests done again after another 4 months.

Life will go on while Fasting , Pranayama, Meditation , Diet , Exercise will continue to be a priority.

happiness

 

~Sarve Janaha Sukhino Bhavanthu ~