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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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7th year after my Stem Cell Transplant for Multiple Myeloma

The last six years have been the longest years in my life. Extremely grateful for being given a second chance to tread our lovely blue planet .

Been living each day with gratitude and lots of hope. Doing my best to share my experience with Alternative treatment via this blog. Have been able to manage my condition (Multiple Myeloma) successfully. It’s been 2 years since I stopped Chemo. So far so good. Was able to help and guide other patients with MM who came across my blog and got in touch with me . Gives me immense happiness.

Learnt a lot about the importance of diet , fasting etc for preventing and treating Cancer. Most importantly , I have experienced the Miraculous healing properties of Curcumin , for managing my condition. Curcumin has powerful healing properties which can treat several diseases.

Nothing else in this world is more important than being alive. Everything else is a bonus 🙂 . Yes, it does sound like I am selfish 🙂 . Take utmost care of your health and love yourself a lot. Be healthy so you don’t have to trouble your near and dear ones if you fall sick.

I am so thankful to my Doctors , family , friends , colleagues and other well wishers who have been supporting me throughout.

happy


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Metabolic Profile C – Test/Reports

It’s been three years since I started consulting Dr Nithin, Ayurveda and began taking Ayurvedic Medication for Multiple Myeloma.

He recently advised me to get a test named ‘Metabolic Profile C’ done.

This was the first time I was hearing about this test. 

Checked on the Internet and learnt that it is a package of 137 tests. Here is a link.

https://www.icliniq.com/en_IN/lab-tests-at-home/metabolic/metabolic-profile-c/PROJ1009076

I glanced through the information and guessed/concluded that it is a comprehensive test to check the levels of all the various Minerals and Vitamins in the body.

This test is offered only at Thyrocare diagnostic centers in India.

At the lab , three fasting blood samples were collected and it took 2 days for the reports to be ready. I was surprised to see the bunch of printouts . The Report had 24 pages in all 🙂

Started turning the pages one by one to find status of parameters like Magnesium, copper, Iron, Zinc, Vitamin K , Vitamin A , lipid profile, Glucose , B Vitamins , Vitamin D etc etc .

Almost all the parameters were in the Normal range except for B12 and Total Cholesterol which were just a wee bit more than the normal range. ESR was high as usual.

Sent the scanned copies of the reports by mail to Dr Nithin .  He said that almost all the parameters are normal. 

He also said there is no trace of any cancer. Yayyy !!!

But what are the parameters in this test that help in detecting Cancer ??!

When I checked the above link once again , I also learnt that the test reveals the levels of Amino acids in the body. There are around 20 Amino acids in all . The levels of Amino acids indicates the Metabolism in the body. It is the Mitochondria inside the cells which produce several of these Amino acids . The Protein in our diet is broken down into Amino acids in the gut . Mitochondria is one of the important Organelles inside the Cell and it is the Powerhouse of the cell. Only healthy Mitochondria can produce sufficient Amino acids to maintain a Healthy body. Amino acids are required for each and every function in the body.

Unhealthy Mitochondria are unable to produce sufficient quantities of Amino acids and also release lots of metabolic waste which is the initial stage of Cancer. 

Is there a way to  improve the function of Mitochondria ?

Yes, by Exercise, Intermittent Fasting , exposure to the Sun , reducing consumption of Sugar etc.

Here is what Dr Nithin has to say about the ‘Metabolic Profile test’ , in his own words –

Metabolomics is the latest in understanding the process of Cancer.

Metabolic profile is for detecting the defect in Metabolism by Mitochondria, a powerhouse of the cell , which becomes dysfunctional and causes fermentation on glucose instead of oxidation, causes release of lots of metabolic waste , which is the most initial step in cancer.

If these levels are normal , it indicates good functioning of Mitochondria. Which can be further inferred that Cancer process is being stopped or arrested. “

That was a revelation !!

As per my report , all the Amino acids are within the normal range.

My B12 level is a wee bit on the higher side. I was taking one capsule of Methylcobalamin (a form of B12) every day. Was advised to stop for 6 months.

I will be continuing to take Curcumin, Ashwagandha etc.

 

 

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Celebrated the good news by going to a restaurant and ordered Molten Chocolate cake 🙂 . I usually  avoid eating cakes as the main ingredient is all purpose flour (Maida) .

 

 


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Back to Curcumin from Turmeric

Went for a few routine tests namely CBP , LFT and RFT on 23rd Jan 2018 and noticed that my Globulin Serum had further increased from 3.8 (Nov 2017) to 4.0 . I was a little worried and expressed the same to Dr Nithin , my Ayurvedic Doctor who then changed my medication from Turmeric to Curcumin. I was advised to use Turmeric instead of Curcumin , for a few months during the later part of 2017.

I guess it was too early for me to make the change from Curcumin to Turmeric . Curcumin is an extract from Turmeric and hence more powerful. It is the Curcuminiods in Turmeric which are effective in the activation of Apoptosis (cell death) in the cells.

It is now one month since I changed back to Curcumin. Meanwhile I was down with Sore throat and took Antibiotics during first week of Feb 2018. I discussed with Dr Nithin and he decided to increase the dosage of Curcumin (500mg) from 3 caps / 3 times a day to 4 caps / 3 times a day . Ashwagandha (500mg) was also increased from 2 caps / 2 times a day to 2 caps / 3 times a day.

Its been a month since my last tests and hence went for the routine tests yesterday. The reports were very good. All parameters were normal .

Hb is 11.2

Creatinine is .9

ESR is 34 , not yet in the normal range (0 – 20) . Not too bad , it was 65 last month.

Globulin serum is back to the normal range (1.8 – 3.6) . Reduced from 4 to 3.6 .

This is great news 🙂 . This was something that was worrying me. Feeling very happy now 🙂

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Dr Nithin also told me to do a test named Metabolic profile c .
Awaiting the results of this test.


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Status update on my MM : 23 Jan 2018

Been a while since I updated my status wrt MM.

Got the CBP , LFT and RFT tests done a couple of days ago.

All renal parameters are fine. Potassium , Glucose , TLC are also within normal ranges.

ESR : 51 ( This is expected , 0-20 is the normal range)

Hb : 10.6 (was 11 in November 2017 )

Globulin Serum : 4.0 (increased from 3.8 in November, normal values are between 1.8 and 3.6 )

This is a cause of concern.

Spoke to my Ayurvedic Doctor who felt there is nothing to be worried about. However I am not comfortable and asked him if I can increase the dosage to 3 capsules three times a day. He actually wants to reduce my dosage if possible. But I am not yet comfortable reducing the dosage right now.

I have been observing a little dip in my energy levels and was also feeling cranky during the last one month.

I had been taking 3 caps of Curcumin for almost 2 and half years since May 2015. All was well during this period and hence a few months back I was put on Turmeric. But the tests in November 2017 revealed that Globulin Serum increased to 3.8 . I was back on Curcumin 500mg 2 Capsules three times a day in December 2017. With the latest reports I feel the dosage of Curcumin has to be further increased .

Glad he agreed and I am back to my original dosage of 3 capsules of Curcumin 500mg three times a day. I will continue to take Ashwagandha , Tinospora Cordifolia , Satavari along with Curcumin . I am hopefull that my counts will jump back to normal very soon.

I shared the reports of my results with a confidante at work. She knows a lot about me and my style of working and feels that I have been exerting myself at work and it is better that I slow down a bit 🙂 . Will do something about this .

In my next set of tests after a month I will be including tests for Vit D , B12 , Uric acid and Calcium levels.

That’s all for now.

Time to take loong deeep breaths and relax :))


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Raw Turmeric Vs Turmeric powder

I am in love with Turmeric, the Golden spice. A lot of research has been done on the health benefits of Turmeric and a lot of people the world over are experiencing positive results.

My being alive on this planet is primarily due to Turmeric.

Turmeric is widely being used to treat several illnesses from minor to major chronic illnesses of the body and the mind. There is a lot of information on the Internet.

Everyone is aware that prevention is better than cure but how many actually take the effort to be healthy.  We don’t even know what to do to prevent illnesses. With the kind of diet and pollution levels ,most people should be worried about ending up with some kind of illness, but are clueless as to how to prevent.

By consuming Turmeric we can greatly reduce and even delay the probability of occurrence of illnesses.

Almost all Indians consume Turmeric via their food . Turmeric powder is one of the key ingredients in most Indian recipes. However , the quantity and quality of the Turmeric powder that is used should be increased so as to get the maximum benefit.

Turmeric can be used in the form of a powder or as raw turmeric. It is preferable to use Raw Turmeric .

The store bought powders may be adulterated. It is best to prepare the powder at home using dried Turmeric root. First crush the root into smaller pieces and then grind it in your mixer grinder.

It is best if you can get hold of raw Turmeric root. You can also grow it in your garden.

Here is a link that tells you why –

https://www.turmericforhealth.com/turmeric-queries/7-reasons-why-raw-turmeric-maybe-better-than-powder#rawturmeric

This website has a lot of information on the health benefits of Turmeric.

Hope you too will benefit from this Golden spice.


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Recalling Memories of Dec 2011

memories

It has been 6 years since I underwent Stem Cell Transplant for Multiple Myeloma. It was in Dec 2011 when I was ushered into an isolated , sterilised , spic and span room where I would spend 15 days all alone.

A room where I would be reborn 🙂 , where my healthy Stem cells would be put back into my bloodstream which in turn would produce fresh and pure blood cells.

I spent Christmas (2011) and the New year(2012) in this room . I had the company of Doctors , Nurses and housekeeping staff who were like family and I would look forward to meet them and chat with them.

Felt too weak to sit by the huge glass window which overlooked the front porch of the building . I had to take the help of a nurse to take a short walk around the room.

Spent my waking hours watching my favorite shows on TV. I kept switching between Cooking , Travel and Religious channels .

Each morning my blood samples were taken and I eagerly looked forward to the reports which would arrive in a couple of hours . The counts of various blood cells would reveal how well my Stem cells were functioning.

A lot of yummy food would be served but it was difficult for me to swallow as my digestive system went on a strike 🙂

I patiently waited for each day to pass. My doctor promised me that he will send me home for Sankranti (a Hindu harvest festival which is celebrated around Mid of January every year ).

Since then , each year around December/Jan , I become nostalgic .

I made a lot of resolutions during those days 🙂 , all that I would do and not do. I have been quite successful with most of the do’s and don’ts 🙂

Feeling very blessed and grateful as another memorable year is passing.

 

 

 


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A write-up on ‘Evidence Based Ayurveda Treatment & Diet for Cancer’ by Dr Nitin Kochar, M.D , Ayurveda

Here is an informative write-up by Dr Nitin , M.D. Ayurveda . I have been consulting Dr Nitin and taking his Medication since more than two and half years for Multiple Myeloma.

Thanks to his advise and medication I am free from Chemo since one and half year.

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Here is the link to the article :

https://www.practo.com/healthfeed/evidence-based-ayurveda-treatment-diet-for-cancer-30780/post

In the writeup , Dr Nitin has written all about the root cause of Cancer and how Ayurveda can help in combating the disease. He also answers some of the FAQs on Chemotherapy  Vs Ayurveda.

Here it is –

Frequently asked queries ?

1Are there any steroids in the Herbal medicines – No, we do not do such kind of unscrupulous or non ethical practice. My drugs can be tested and subjected to any kind of test for that matter. 

2) Are these drugs safe during Chemotherapy- There are certain reports, published in good journals, which has proven good effect of chemotherapy when combined with herbal treatment. ( Care to be taken that herbal treatment should be of standardized quality and should not be given on the day of injectable chemotherapy, rest it can be given. It also depends of stage and type of the cancer, so final decision to be taken only after discussing every pros and cons) . There are various clinical studies indicating that if standardized herbal preparations of Curcumin, Ashwagandha are given along with chemotherapy, results are better. Many chemo resistant cancers respond very well when supplemented with Curcumin , Ashwagandha & Tinospora cordifolia. 

3) Can herbal therapy replace or avoid chemotherapy– No, one should follow complete modern protocol as it is. Herbal treatment is mainly given to as chemo adjuvant to improve the immunity and mitochondrial function as stated above.

4) Can Ayurveda treatment avoid surgery and radiation- All of you will be surprised to read the fact that, in Ayurveda, which was written 3000 years B.C., it is clearly mentioned that, first line of treatment of Cancer is to surgically remove it and then to ” Burn” the margins, this concept is similar to today’s modern protocol of Surgery followed by Radiation. So any tumor , if operable, should be removed promptly by an expert Onco-Surgeon. 

5) What is Chemo prevention ?  This term was coined by Dr Michel Sporm, in 1976. Chemopreventives are the drugs, natural or Synthetic , which have potential to Reverse , Suppress and or Prevent further growth of cancer. I advise various such Chemopreventive herbs and ways to many normal people and also to cancer patients.

 

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I am extremely grateful to Dr Nitin and wish that many more will benefit from his expertise.

In my Blog I have chronicled my journey , experience and progress with Alternative Treatment.

 

~~ Have a good Day !!