Shutterbug's Blog

Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Bone Marrow Test (after a year) – 14 June 2018

Been a year since I had the Bone Marrow Test.

I took the test once every six months since 2012. However, last year in June ,my Oncologist Dr Suresh said I can meet him after a year. This test is done once every six months during the first five years after a Stem Cell Transplant and from then on it is done once a year as per the protocol. My Oncologist , being an Optimist and a Crusader told me last year that I am ‘Technically Cured’. Sounds wonderful isn’t it !!? 🙂

I have been using Curcumin , Ashwagandha and other herbal medicines since last three years. I get these Medications from Dr Nitin, Ayurveda . Since last two years , on the advise of Dr Suresh , I stopped taking chemo tablets.

The past year has been quite smooth ,  except for the Sore throat infection a couple of times. My Vitamin D levels were low and I am taking supplements to improve the levels.

The day has finally arrived.

After the Bone Marrow Aspiration procedure was completed , my Oncologist asked me if I was comfortable. Yes, he does the bone Marrow aspiration. I said , I am comfortable and he smiled and said I am his only patient who doesn’t crib or complain :). He must be kidding. He is definitely the best , he completes the process in a jiffy. It is all over in a couple of minutes , all through he would be chatting . I can’t imagine anyone else doing the procedure .

Blood samples were taken for the following tests : Immuno globulin , Electrophoresis , Bone Marrow aspiration, Chem 20.

Will have to wait for a week before the Reports are out.

Till then I plan to watch a few movies on Amazon Prime 🙂

 

as you wish

 

Take Care !!

 

 


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World Environment Day – 5 June 2018 : How to Reduce the usage of ‘Single use Plastic’ and more

What better way to celebrate World Environment Day , than by following/sharing some very useful tips about reducing the use of stuff that is choking life on our dear planet. Yes , its the PLASTIC !!

I have subscribed to a Travel Blogger who has posted an excellent compilation on ways and means to reduce Single Use Plastic and lots of other tips.

https://the-shooting-star.com/2018/06/03/world-environment-day-single-use-plastic-india/

These tips can be followed while travelling and in our day to day life too.

 


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My Blog Name : Devil or Angel

If you wanted to know why I choose this crazy sounding name for my Blog , read on….Choosing the name of a Blog is tough.

A question crops up in my mind very often. Am I an Angel or a Devil or somewhere in between. There are folks who think I am a nice person and there are those who know my darker side and may not think good about me. I also appear very stern/rigid to a lot of people :). Hence , I often introspect and this question is the foremost one that frequently pops up in my head. I ask myself what is it that I am doing right and what is it about me that is not right . At times I am devilish , at times I am like a child and there are situations where I go by instinct , good and bad . And so , when I planned on starting a blog and had to decide on a name , this is what popped up immediately. I said to myself , why not !!? I felt that the Blog name should reflect my core personality and feelings.

The purpose of this Blog is to share my experiences while I battle Multiple Myeloma . I have always felt that my innate nature is responsible for my present condition. That I had not prioritised , I was not assertive, taken wrong decisions , was impulsive etc etc. So , that is how the name of my blog emerged.

Devil or Angel

This name reminds me to introspect more often . All of us think we are doing the best , that we are always right. But each one has to put themselves in the others shoes and understand why someone behaves in a particular way and observe how we are reacting . We also have to understand how our behavior is affecting others behavior towards us..

It is highly recommended that we list the Devilish stuff that we are made up of and also the good Angelic stuff .

I have a list of my own wrong stuff which I am aware and I have successfully eliminated most of it.

I am also aware of the nicer part of me.

This name keeps a check on me 🙂

As I continue to ponder on the nature of the mind , the conscious part , the subconscious part and the pure Consciousness , the cobwebs slowly get cleared. It is a highly liberating experience when we Let Go and realize that all of us were born innocent and got transformed due to various external factors. However , we have to put efforts to unload all the unnecessary baggage, called EGO, that we carry around and put all efforts to give back to humanity and nature so as to make the world a better place.

Not to forget that we are here for a purpose and at the end of the day we have to find that purpose for which we are brought into this world.

I hope to be less Devilish and more Angelic . It is a Work-in-Progress 🙂

 

 

 

 


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Nature Therapy : Random road trip around Himayatsagar lake , Hyderabad

I love looking at various places all over the world on Google Maps. I enjoy going through the photographs that people post there. Gives a vicarious pleasure 🙂

Each time I look at Hyderabad , my home town , on Google Maps , the two prominent lakes namely Osmansagar and Himayatsagar always attract me.

Very often I zoom into the areas around these lakes and imagine driving around these places. Thankfully , construction activities are not permitted in the catchment areas of these two lakes . I see lots of Farms/Resorts around the lakes and the place looks beautiful from up above :)) . I always wanted to go there some day. That someday finally arrived . Went on Sunday .Mom too wanted to go for a long drive with the kids just before she gets her eye operated for cataract . Mom and I have this craze for exploring/visiting open farms and fields . Went there yesterday along with my Mom, niece and nephew . The area adjacent to the lake obviously has sufficient ground water and the whole area is cool , nice and green even during peak Summer which we are now experiencing.

Here are a few pics from the drive.

Spotted an Ibis, a black bird with a long curved beak.

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These women were cutting Spinach and tying them into bunches which will be sold in the markets.

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Got freshly picked Bhendi’s and Bottle Gourds from one of the owners.

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Car Dikki 🙂

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The kids had fun playing with the cool water flowing from a Borewell pipe.

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Another farm had Chukka koora, also called Khatta Palak in Hindi.

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The owner gave us some Chukka koora.

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My Nephew was excited to see Chicken and Eggs in this Poultry farm. He came back screaming “I saw eggs !! ” 🙂

We should have picked up a few dozens of Eggs too 😉

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We saw a few buffaloes which were being milked . Wanted to ask if they would sell some milk but we didn’t have any container either. Our Driver suggested we use the water bottles. We were on the fag end of our trip so we quickly gulped the leftover water and filled two bottles with fresh milk 🙂 .

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We took the road less traveled. Lots of Narrow paths leading to these fields. Would have been risky if it was  the rainy season. We did see a lot of fruit bearing trees Came across lots of farms with Mango, Lemon , Jack-fruit and Sapota/Cheeku trees.

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Thanks to Google Maps and GPS , I was able to easily guide our driver around these narrow paths . Came back home with some fresh goodies and a great experience.

Lot more areas to be explored around these lakes. Will go back for more :).

 


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Picture story from a recent visit to our Village – Apr 2018

Here are a few Pics from my recent visit to our Village near Nellore.

Free Range hens with their little ones . This is one of the most common sights as soon as you leave a city or town. The moment you see them near you , you would be tempted to rush and catch hold of one of those little ones but would fail miserably 🙂

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Another common sight is the Dry Hay Stack. Once the harvest season is completed , all the Hay is collected and shaped into this form . It is then tied with a rope, made out the hay, to protect the hay stack from the wind. Cows and Buffaloes munch on this Hay when there is no grass during Summers.

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Time to go home after grazing and playing in the fields , the whole day.

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This woman has brought her wares , fresh green leafy veggies and Raw Mangoes . She has come all the way from the neighboring village where these are grown. She carries her stuff in a cloth and an Aluminium vessel. People in the villages get to eat fresh veggies which are harvested in the morning or on the previous day. The veggies that we get in the cities , that are on the shelves of the supermarkets and sold by other friendly neighborhood vegetable vendors are from the cold storage’s and would have been lying there for days / weeks / months.

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Mango Chutney is being made in the traditional way, using a Stone Mortar and Wooden Pestle . The taste of chutneys is doubled when prepared in this way rather than in a Mixer Grinder. Good exercise for the body too as one has to sit on the floor .

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Rice balls (Rice powder + Jaggery water + Ghee ) steamed in a clay pot.

 

Time for the ducks to go home after eating/playing in the adjacent fields.

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Looking forward to my next visit 🙂


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Random Musings – Apr 2018

Lethargy , drowsiness , muscle pains : Was feeling lethargic ,  drowsy and had mild Back pain all through the month. Felt like lying down often. Would wake up in the morning with Muscle pains and feverishness. I had got a Metabolic Profile test done during first week of March and all my parameters were normal except for Vitamin D. I did not take any supplements in-spite of being deficient in Vit D. I suspected the levels would have dropped further and went for a test again. My guess was right.  continued to be deficient.  On the advise of my Ayurvedic Doctor I have started taking Vitamin D injections. After 2 Injections I feel much better now . Few more coming up.

Visit to Nellore : Got the opportunity to visit our Village in Nellore. Went to Tirupati by flight and drove to Nellore via Venkatagiri. Mom and I had this wish to visit Venkatagiri to buy the famous Venkatagiri sarees . This wish was fulfilled. We did buy a few sarees . The Original traditional Venkatagiri cotton Sarees which had a border made with Pure silver threads are not available now. Unfortunately these are not being woven anymore.

It was beautiful pleasant drive in the evening .  The roads are very good .

Sunset near Venkatagiri Hills.

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Spent a few refreshing days in our Village .  Felt one with Nature , closer to the Earth, Sky, Air and Water . Saw numerous Stars in the Sky when there was no Power for a while. Can’t believe there are so so many stars , those living in the cities can never even  imagine . Had Dinners under the Stars while sitting on a wooden cot.. I would look forward to the evenings so I can lie down on a wooden cot watching the stars  . The Bay Of Bengal is around 7 km from our village. The Summer had just begun and during Summer months the best part of a day is the evenings due to the cool Sea Breeze which can be felt from around 4pm .  Walking barefoot on the Sand,  watching cattle , sheep , ducks enjoying in the fields . Time literally slows down.

These are Priceless moments that can never be experienced in the Cities.

Will post a few pics from the village in another blog post 🙂

Pudina (Mint)  Fried Rice : Made Pudina Fried rice for the first time. I use Mint leaves in several Masala Curries for its flavour, I make Pudina Chutney , I also use the leaves as a flavouring in several other fried rice recipes. But never used Mint leaves as the main ingredient in a Fried rice recipe.

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Harvested some fresh Organic Mint leaves from my garden. The dish was  yummy . Here is the recipe that I used.

Itching all over my Body: I started experiencing itching all over my body at random places and random intervals. I thought it was due to eating Brinjal . I had experienced this a couple of times earlier and the itching lasted a few days . This time it continued for 10 days and I had eaten just one small brinjal :). I was then convinced that there has to be some other cause. I finally discussed this with my Ayurvedic Doctor .He told me to reduce the dosage of Ashwagandha. I had been taking 2 capsules three times a day. So I completely stopped for a couple of days and the itching vanished. I am now back to my original dosage of 2 capsules two times a day and things are fine 🙂

I will be getting a Bone Marrow Test done in June. It’s been a year since I got the test done. Last June ,my Oncologist said that I can come back after a year instead of the usual six months, as I am ‘Technicaly cured’ 🙂 . During this one year I had been getting the CBP, LFT and RFT tests done once in a few months. I also got a Metabolic Profile test done. So far so good.

 

~ Take Care ~

 

 

 

 

 

 


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7th year after my Stem Cell Transplant for Multiple Myeloma

The last six years have been the longest years in my life. Extremely grateful for being given a second chance to tread our lovely blue planet .

Been living each day with gratitude and lots of hope. Doing my best to share my experience with Alternative treatment via this blog. Have been able to manage my condition (Multiple Myeloma) successfully. It’s been 2 years since I stopped Chemo. So far so good. Was able to help and guide other patients with MM who came across my blog and got in touch with me . Gives me immense happiness.

Learnt a lot about the importance of diet , fasting etc for preventing and treating Cancer. Most importantly , I have experienced the Miraculous healing properties of Curcumin , for managing my condition. Curcumin has powerful healing properties which can treat several diseases.

Nothing else in this world is more important than being alive. Everything else is a bonus 🙂 . Yes, it does sound like I am selfish 🙂 . Take utmost care of your health and love yourself a lot. Be healthy so you don’t have to trouble your near and dear ones if you fall sick.

I am so thankful to my Doctors , family , friends , colleagues and other well wishers who have been supporting me throughout.

happy