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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Alternative Treatments for Cancer

 

miracle ahead

People with chronic diseases go for various treatments depending on the faith they have in a particular treatment.  Most use allopathy by default, as the duration of treatment is the fastest ,success rate is highest and the results are quick. Some follow a different treatment based on the experiences of their near and dear ones or when Allopathy has no solution or as a last resort.

But usually for cancers Allopathy is the first and foremost treatment that one opts for as the diagnosis itself happens in the third or fourth stage wherein the disease would have progressed to a large extent and Allopathy would be the best treatment. .

I didnt think of Alternative treatments for two years after I was diagnosed with Multiple Myeloma . I started experiencing side effects of Chemotherapy in the third year and I began scouring the internet for other treatments.

Internet is full of articles on Alternative Treatments . Initially I didnt believe all that was written on various websites and was being said on youtube videos by patients. I found them ridiculous too. Always wondered how it was possible that people are getting cured of Cancer which is not curable . Not just ‘managing’ but they were getting ‘cured’ and have been living for decades without any Allopathic treatment. I felt that these people were just exaggerating , that they wanted people to watch their videos , knowing that many would be looking up , that they were just uploading these videos to get a lot of views/hits. There were websites which talked a lot about a cure but at the end of the page there is a link to a book with a price or some secret methods which confirmed my fears that people only wanted to make money by luring desperate patients.

I wanted to believe all this was true , that there is a way , but was not convinced.

I came across various articles on the reasons for cancer and a cure. Juicing, diet, exercise, detox , supplements, antioxidants , various high frequency protocols, immunotherapy , Ph therapy, effect of yoga and meditation for curing the disease and the reasons for cancer varied from DNA mutations to microbes to lack of Vitamin D , poor diet , stress etc. These are a few of the topics that I was reading and trying to digest . All the information was baffling.

Just when I relapsed , at the end of the third year after my Bone Marrow Transplant for Multiple Myeloma, I came across a blog written by Margaret , a patient with Smouldering Multiple Myeloma. She was using natural supplements and has been successfully ‘managing’ the disease for more than a decade. After reading her blog , all the information and videos that I had seen suddenly flashed across my mind and I began believing all that I had read and seen. Suddenly all of it made sense. I was desperate for an alternative solution.

I talked to my Oncologist if he could recommend any Ayurvedic doctor but he was unaware of any specialist in Ayurveda. Ayurveda is an ancient Indian mode of treatment  which uses natural herbs for curing various ailments. He didnt discourage me from using any alternative treatment and advised me to use ‘Tinaspora Cordifolia’ , a natural immunity boosting supplement.

I recommend everyone to do their own research. Once convinced one has to start incorporating one or more methodologies as per their faith and convenience. One needs to have faith in the treatment and should go all the way and follow the methodologies scrupulously.

I have almost given up food products made with sugar , milk , all purpose flour , rice and also reduced salt intake .All of these comprise a bad diet. These are the five white poisons that Ayurveda recommends to avoid.
I also read that cancer cells feed on sugar. I initially started taking supplements like Curcumin (in the form of turmeric) suggested in Margarets blog , started doing Pranayama and meditation , I also started taking ashwagandha , shigru , punarnava , garlic , had ginger decoction in the morning, eliminated most acidic foods  and lo and behold within three months my MSpike was down to Zero !!

It is nothing short of a miracle.

I was later referred to an Ayurvedic Doctor by another MM survivor and since then I have been using Curcumin and other natural supplements since last one year. Fasting is also part of my regimen. I have been encouraging the use of Curcumin to whomsoever I come across. Curcumin is an extract from turmeric .Turmeric is a spice that is extensively used in South Indian cooking and as a medicine in India for various ailments.

It is one year and 3 months since I started following the new regimen and my M-Spike is in control.

Talk to other patients and their caregivers who follow Alternative treatments make your own decision.

If there is a will to survive , a solution will appear out of the blue. Never give up !!

Have patience and the Miracle will happen.


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Update on my break from Lenolidamide

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I have been taking Lenolidamide 5mg since Dec 2014 as there was a relapse of Multiple Myeloma.

Thanks to Lenolidamide and Alternative medication , my M spike was zero during two consecutive bone marrow tests done in 2015.

However I started experiencing side effects of Lenolidamide in the form of a drastic drop in the counts of TLC and Neutrophils in Jan 2016.
I also had several infections simultaneously. Sore throat ,stomach upset ( diarrhoea ) , asthma attack, eye infection and UTI.
My oncologist told me to stop lenolidamide for one month. During this one month , ie Feb 2016 , I continued taking Curcumin and other immunity boosting tablets.

Went for the CBP LFT AND RFT tests after one month at the end of Feb 2016. All the counts were back to normal. Got a test done for Vitamin D too and the result was normal .
Met my Oncologist with the reports. He was happy with the counts and told me to come back after 3 weeks with new reports. Told me to discontinue Lenolidamide for this period too.

I am currently taking three 500mg capsules of curcumin three times a day and other immunity boosting tablets two times a day prescribed by my Ayurvedic doctor .

I have been off chemo medication for almost 2 months now. Hope to stay away from chemo forever.

Will go for the next routine test in the last week of March 2016.

Keeping my fingers crossed.


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My ‘Curcumin Regimen’ and other Natural supplements for Multiple Myeloma

I have been using the following Natural supplements since 2 months ,inspired by Margaret . Some i have included based on other research  . I am confident that these natural supplements are doing a great job .
1. Haridra (Circuma Longa/Turmeric) 400mg from Himalaya  – 2-3 times a day
2. ‘Flaxseed oil’ capsules 500mg from Sri Sri Ayurveda – along with Haridra
3. ‘Garlic oil’ capsules 500mg from Sri Sri ayurveda – 2 times a day ( self discovery . noticed that severe itching in my throat because of Lenalidomide subsides with Garlic)
4. ‘Ashwagandha’ capsules (Withania somnifera)  250mg from Himalaya – 2 times a day
5. ‘Guduchi’ capsules 250mg (Tinaspora cordifolia) from Himalaya – 2 times (advised by my Oncologist)
6. ‘Shigru’ capsules 250mg (Moringa pterygosperma) from Himalaya 250mg – 2 times a day
7. Amla candy (Goose Berry , rich in Vit C ) 4-5 pieces – 2 times a day .
8. Every morning i drink ginger (one inch piece)  decoction to which Lemon juice (quarter lemon) and turmeric powder (from my kitchen) is added.
9. At times i replace ginger decoction with decoction made with leaves of Simarouba Glauca (There is a post on this in my blog ) I add Turmeric powder (from the spice rack in my kitchen 🙂 ) and lemon juice.
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Apart from the above i continue to take the following Allopathic medications as per the advise of my Oncologist and Physician :
1. Renerve (Methylcobalamin ie B12)– One per day
2. Antoxid HC (Beta carotene,Selenium,Zinc Sulphate,Manganese , Copper– One per day
3. Calferon plus ( Calcium,D3 (Vit D) )- 2 times
4. Acivir (Anti viral)- 800mg (one every alternate day)
5. Lenangio (Lenalidomide) – 5mg ( one per day)
6. Dexorange (Hematinic syrup) – once or twice a day whenever my Hb count is below 11
7. Ecosprin 75mg (Aspirin) – One per day after lunch
Have been using the above for 2 months . I feel energetic, my constant muscle pains have disappeared , I feel less anxious.
My current results are M spike : Not seen and Plasma cells < 1% .


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M spike – Not seen !!

My Bone Marrow test results , 4 months after changing to Lenalidomide from Thalidomide , are out.

For 3 yrs prior to Dec 2014 , post Autologous Stem Cell transplant in Jan 2012 ,  i had been taking 50 mg and 100mg of Thalidomide.

My hubby , dad and I went to the hospital yesterday , to pick up the reports.

We were very apprehensive as to what the results would be. We opened the reports while walking towards the lift and saw the words ‘M spike – Not seen’ . Whatever that implied !!??

My Bone marrow aspiration was done exactly 5 days ago and that day i had asked my doctor about M spike ,what it meant and what should be the ideal value. He said that the value is ‘zero’ in a healthy individual.

When we showed the reports to my doctor , he said that the results are absolutely fantastic. ‘Not seen’ implies the M spike is ‘zero’ . He was extremely happy for us and we were very excited. The plasma cells too were less than 1% which was 10-12% 4 months ago ( a relapse)

I asked him if Lenalidomide is the reason, he replied ‘ you are responding very well to Lenalidomide’

In Dec 2014 my doc had said ‘ Sorry, you may have to be prepared for another round of SCT after 3 months’ and yesterday he said ‘No worry , we need not do the SCT now ,we can postpone till we reach 25 mg of Lenalidomide which is available in 5 mg , 10 mg, 15 mg, 20 mg and 25 mg and it may be 2 yrs or 5 yrs before we reach that dosage’

For now he told me to get back after 2 months with CBP , LFT and RFT reports.

Dad was so excited , he called up Mom and Sis and updated immediately.

Hubby immediately opened the first BMA report after 6 months of my transplant and showed us that the latest report is the best ever. The results even after the transplant were not as good as they are now 🙂

We thanked the doctor and the Almighty and came home.

We hadn’t mentioned the Alternative natural products that i had been using for the last 45 days.

I had discussed these during my visit last month when i went to show the CBP,LFT,RFT reports.

He had said i can go ahead with these products and that he is not against alternative treatments. His reply gave me a lot of relief.

I strongly believe that using natural supplements and immune boosting foods did have a major role in bringing down the M spike and plasma cells.

Will write all about my Ayurvedic protocol , inspired by Margaret , in detail in my next mail.

I am so excited that i wish to scream to the world about my Ayurvedic discovery and share with other patients suffering with Multiple Myeloma.

Here is an interesting article on Circumin( Turmeric) and Multiple Myeloma

http://www.myelomabeacon.com/news/2010/02/17/curcumin-and-multiple-myeloma-preclinical-and-early-clinical-studies-are-promising-still-awaiting-more-clinical-evidence/