Multiple Myeloma is a condition when Plasma cells in the blood start misbehaving. These cells form antibodies , which fight infections. When these plasma cells undergo mutation in the DNA, they develop into antibodies which do not perform their job well and on top of that they do not die. They are supposed to die after doing their job well. This is called apoptosis. Every cell in the body dies after doing its job. When they don”t die and start accumulating in the blood and inside the Bone marrow the condition is called Multiple Myeloma.
Low immunity
Anemia
Back pain
Pain in the feet and legs in general
Pain in the lower ribs and also just below the lowest part of the ribs on either side of the body
Feeling weak and lethargic
Always feeling sleepy or wanting to rest . Waking up early is difficult.
Suffering from frequent infections in the throat, stomach etc
These are the usual symptoms and were my symptoms as well , before I was detected with MM.
I always felt very weak. I would find it very difficult to wake up and get out of bed. I always wanted to sleep. I kept dragging myself to work . I was unable to stand for more than 10 minutes while I cooked. My feet would begin to ache and I had to sit down every 10 mins. I met several physicians in the last few decades. I also went for a complete health check up too. All of them recommended Iron supplements for my perennially low Hb count. I always took the course and felt good for a while and soon my symptoms were back. The cycle would repeat.
I frequently suffered from throat infections since I was a child and had to pop in a lot of antibiotics too. I also suffered from bronchitis as I am allergic to dust. This too could be due to low immunity. I kept telling my doctors that I frequently fall ill but none of them suggested any further investigations.
Many times I would be told to get a chest X-ray done as they suspected TB, but the result was always -ve.
I had also met an Ayurvedic doctor who checked my pulse . It is called ‘Nadi pariksha’. He prescribed a lot of medications too and said I was highly stressed and that I should do pranayama and meditate regularly.
My actual problem went undetected for decades.
I suffered a lot when I had my periods. They would always arrive early. Severe cramps ensured that I take a pain killer and was unable to go to work. I hated myself for being a girl :((
One day in 2011 , I slipped on the stairs and had an L5 compression fracture in my spine. My bones had become very weak. A normal healthy individual would not have been affected by that kind of a fall. Don’t know how and why the Orthopedic doctor did not suspect that something else could be wrong. He could have at least told me to get a test for calcium and Vitamin D done. I was told to use a cross shaped device for 3 months to heal my fracture.
Just after I recovered from my fracture , I collapsed and fell sick . I suffered from viral fever, throat and stomach infection simultaneously , started experiencing chills with fever in the evenings. A physician who had a clinic where we lived suggested I get blood transfusion as my Hb was 6 . We then decided to go to Apollo and get a second opinion. The Physician there suspected MM after a few preliminary tests.
A few tests like LFT, RFT and CBP can help in pointing towards MM.
A high ESR because of inflammation in the body. CBC Report gives the ESR value.
A high Serum Creatinine in RFT report.
Serum Globulin in LFT would also be beyond the limit.
Hb would also be low as per CBC report.
These are some of the parameters that can give away MM to a discerning physician.
Further tests including Bome marrow tests Electrophoresis will be done to confirm.
Thanks to Allopathy and Alternative treatments for giving me a second chance. I am actually living a healthier , productive and happier life after my Stem Cell Transplant followed by Ayurvedic treatment and proper diet.
So glad I got a second chance to tread this beautiful planet.
I get to talk/chat with caregivers/patients with Multiple Myeloma . Each one of them has a different set of queries.
One such patient, who was advised to go for a BMT by my Oncologist , was preparing to get admitted to the hospital and called me a few days ago.
I first met him when he was just diagnosed and wanted to know about my condition in general.He was not ready to go for the BMT then. My Oncologist had suggested he speak to me and gave him my phone number.
The second time , he called me and he was more specific and wanted to know what to expect during the BMT ,while he is in the sterile ward .During the BMT process the patient is in a sterile and isolated room for approximately 15 days. This is a must as the patients immunity would be at the lowest and hence prone to infections.
He was worried whether there would be unbearable pains in the body, severe burning sensation in the stomach , whether he would be able to walk and other details.
This post is specifically to provide details as to what actually happens during the two weeks in the sterile room and precautions to be taken after the patient is discharged.
After the Stem cells of the patient are harvested from the patient (for an autologous transplant), the patient is moved to the sterile room. A high dose of chemo is administered to the patient via the ‘Chemo port’. All parameters are monitored every morning, which includes blood tests. For a few days the patient feels very normal and is given normal food. Around 4th day they start experiencing tingling sensations in the legs. The feet feel heavy , numb and restless. These are the symptoms of ‘Neuropathy’ (The fine nerve endings in body are affected, a side effect of chemo ). The mouth begins to feel dry and there is a mild sore feeling in the mouth. The patient is unable to eat spicy food. The digestive system gets affected as the lining in the esophagus ,stomach and intestines become sore due to the chemo dose. Medications are given to soothe the digestive system.
During the first week , the patient’s blood counts go on reducing , the WBC count becomes zero. Meanwhile the patient is given platelets and blood transfusions as the body is not yet in a position to generate its own cells. The patients own harvested stem cells ( our very own fresh and healthy new babies ) are given back to the patient via the port. These cells reach the Bone marrow and divide to form all the various other blood cells like Red blood cells, White Blood cells, Platelets , Neutrophills etc .
During this period the patient is unable to eat any solid food. Food is given in the form of Fluids. A dietitian visits almost every day and based on the patients condition/feedback the diet is changed.
Around the 7th or 8th day the patient’s own WBC count begins to increase. This is an indication that the Stem cells have started doing their job.By the end of the second week , the counts of all other blood cells like platelets, RBC , Neutrophils etc increase and reach almost normal levels.
The patient will begin to experience loose watery stools, nausea and vomiting.
Not to worry much.Go with the flow :))
There were times when I would be frustrated and irritated with the nurses for no fault of theirs. When they took longer time to retrieve by blood samples or did not attend to me immediately when I give a buzz etc . At one point the Air Conditioning was faulty and I created a big scene and informed that I wanted to meet the Hospital Admin staff. But they kept calm and handled me well :))
Patient feels weak and may not be able to move around the room without the help of a nurse.
It is advised to get out of the bed and walk around the room as often as possible with the help of nursing staff.
At the end of two weeks , once all counts get back to normal the patient would be able to walk on their own without any help.
A day starts with blood samples being drawn. The patient is given a bath ,dried , moisturizing cream is applied to the body and dressed. Allow the nursing staff to do whatever they would like to do. Just hand over your body to them and cooperate.They treat you like a baby. Enjoy the pampering :))
Breakfast is served . Time for medication. All medications are given through the chemo port. Lunch is served. One can watch TV. The cleaning staff do their job. Time for a visit by the doctors . Depending on the patients condition, several doctors will visit and at times they might disturb your precious sleep :). A dietician does a followup. Watch more TV. The patient may puke a few times and visits the washroom a few times 🙂 Watch all your favourite programs and channels during these days .
I would watch Travel shows, Discovery channel , National Geographic, Cookery shows on various channels ,Bhakti channels , NDTV Goodtimes. I was least interested in knowing what was happening around the world wrt current news. There will be short naps now and then. My Oncologist said that I could use my smartphone/tablet/laptop but I had no interest in being in touch with anyone. Most of the time an IV bottle is connected and hence difficult to move.
At times I would request the nurses to stay with me and we would chat and watch TV together.There were 6 nurses in shifts and we would share our stories. I frequently wanted my feet to be massaged and the nurses would gladly do it.
The skin colour becomes darker by a few shades due to the chemo. This is when we realize that being alive is more important than the colour of the skin or the appearance :))
There was a huuuge window in my room on the 3rd floor which overlooked the entrance to the hospital. The window covered 3/4th of the wall. I would watch people go by and wonder why the world is so complex when all that matters is to be alive. Being alive itself is a reason for celebration and happiness , and everything else is a bonus :)) .
You are permitted to talk to your near and dear ones on the phone. They may be allowed to visit once or twice.
On one of the days I was allowed to see them through a small window in the nursing station once my counts began to increase.
My family would be waiting outside the Main door of the isolated ward most of the time during the day . They would be busy arranging blood donors from family , friends and colleagues and eagerly look forward to listen to what the doctors had to say on my progress.
Every day they would see my plate of food arriving and going back without being eaten. I would feel like eating different stuff but when it was brought I was unable to take even a few bites . There is no saliva in the mouth and it becomes very difficult to chew/swallow.
I would be worried that I was unable to eat. How would my cells multiple if I dont eat ??!!
But they do , so don’t worry about it :)) . Relax 🙂
There are no pains because of the Chemo nor any other burning sensation in any part of the body.
When you are ready to be moved out the sterile ward , you can actually walk out on your own but do sit down in the wheelchair and enjoy the ride to a normal ward . It is a great feeling to be finally out in the world :).
You will be in the normal ward for a couple of days. These few days seem like ages :)). Every hour seems like eternity. Finally it is time to go home … the sweetest place on earth 🙂
The next one month is going to be difficult when it comes to eating food. The nausea and vomiting continues . You will be given medication to reduce nausea. Continue to take fluids and protein supplements prescribed by the dietician. Ensure you meet the dietician before you are discharged.
Have patience ..a lot of patience is expected from the patient as well as the caregivers.
The patient feels very weak . The bones are very tender and some effort is required to even turn your body on the bed. But that’s okay . Things will improve . Do a few exercises while lying on the bed. A physiotherapist will guide you during your stay in the hospital.
Take all your medications without fail. Feel free to talk to your doctor as and when you experience any problem or have a doubt.
Drink lots of water.
Do not venture out of your house for a couple of months. Since the patients immunity is low they will be susceptible to infections. Need not worry even if there are any infections. Just go ahead and get the medications. Stomach , throat , eye , respiratory , skin infections are some of the common issues that one might face.
Have patience . This too shall pass !!
In a few weeks you would want to eat all kinds of stuff , but go slow as the digestive system is not yet strong .
In a few months you will be back to normal and you can go back to doing whatever you were doing.
This is also the right time to look up for information on alternative therapies on the Internet. Do you own research and you will definitely find a way to stay healthy and beat the BIG C forever.
It is 3 months since I had my Bone marrow test .My results were -ve , No M-spike was seen.However , my Oncologist wanted me to be back with my CBP , LFT and RPT reports after 3 months. I actually expected he would say I can come back after one year 🙂 but he didn’t want to take any risk. So I complied. I remember him saying that after 5 years of having the Transplant (Bone marrow Transplant) , I will have to take the Bone Marrow Test once every year. For the past 5 years I have been doing the test every 6 months .
My Hb touched 11 for the first time in decades. The range for a healthy woman as per my report is 11-14. This is an achievement !! A record break !!
Yayyyy !!
My Globulin Serum too is 34 which is well within the range. A bigger achievement !!
He was very happy on seeing the reports 🙂 and exclaimed ‘you are off all medication isn’t it ?!!’.
I said “Yes Doctor, but I am continuing to take Curcumin and I am sure it is helping me “.
It is one year since I stopped chemo and taking only Ayurvedic medication.
He then asked me , “Do you think people should go for a Bone Marrow Transplant”.
I was confused.
I immediately said “yes, there is no other option “.
I then reminded him about the advise he gave me , after my Bone Marrow Transplant (in Jan 2011) , about using “Tinaspora Cordifolia” , to improve my immunity. Later on , it was this advise that motivated me to look for alternative treatments and I finally found the way.
Having started using Curcumin 2 years ago ,followed by good results , I had been very eager to push Curcumin and I wanted my Oncologist to prescribe Curcumin along with Tinaspora Cordifolia to all his other patients.In fact, I started using Curcumin, two years ago, just when I was advised to go for a second Bone marrow transplant .
The right time had arrived and I blurted out ” Doctor , you can also recommend Curcumin to other patients. I have read a lot on the Internet and it prevents and treats all types of cancers.My ayurvedic doctor gives me Tinaspora Cordifolia too ,along with Curcumin and some other herbs”
He nodded and I felt relieved that I finally said what I wanted to say :))
It is a delicate situation wherein a patient suggests an Allopathic Doctor to prescribe Ayurvedic Medication to his other patients . I am so glad that my Oncologist is open to try out other forms of treatment and encourages his patients.
Hopefully more patients will benefit and will be encouraged to try ayurveda , the way I did.
My sincere thanks to Dr Kochar, Ayurveda and Dr Suresh , Oncologist.
I was diagnosed with Multiple Myeloma in Oct 2011. I Underwent Autologous Stem Cell Transplant in Dec 2011.
I was on Thalidomide from June 2012 to Dec 2014.
In Dec 2014 my plasma cells started increasing and my Oncologist suggested that I go for another Transplant. I was put on Lenolidamide.
After some research on the Internet I started taking Ayurvedic medication. After three months my condition improved. I met Dr Kochar in Apr 2015 and started taking his medication along with Lenolidamide.
On the advise of my Oncologist , I stopped Lenolidamide in Feb 2016 , as I was in remission.
That was the most miraculous moment in my life 🙂
I continue to take Ayurvedic medication prescribed by Dr Nitin Kochar, Mumbai.
I am currently taking the following Ayurvedic medicines :
Curcumin Ashwagandha Tinaspora cordifolia Satavari I also take another tablet which is a mix of several herbs.
I also take allopathic supplements like Renerve (Mecobalamin), Antoxid HC (Selenium+Copper+ zinc ) , and a tablet whenever my uric acid levels are on the higher side. I also take Folvite daily.
I fast one day every week.
Exercise is always recommended but I was unable to do any form of exercise all these years as I felt weak. I now feel strong enough to go for a walk . I started going for walks since one month and I am enjoying. I currently walk a distance of 1km in 15 mins, straight after work before I go home.
I do pranayama and meditation along with few simple yogasanas in the morning before I go to work.
A colleague recommended the book ‘Dying to be me’ by Anita Moorjani.
It is the true story of Anita, who had a Near Death Experience when she was almost on the verge of dying from Cancer,went into coma but recovered completely in a few weeks after that experience.A miracle by all standards.
I have come across people who have been managing quite well and living for several years. I recently learnt about a woman who was diagnosed with Multiple Myeloma 23 years ago.She meditates regularly and is doing fine.
While reading the book ,I was nodding at every point that was mentioned by Anita. About how we restrict our true feelings for the sake of society, about how we feel inadequate , how we give the least priority to ourselves etc.
Her experience during NDE about feeling one with all the beings in the universe , about realising that we are made up of love , about experiencing past present and future simultaneously , feeling love for all beings etc are all the same stuff that all spiritual masters have been saying all along and is written in various biographies and scriptures of hinduism and possibly other religions too.
I picked up the following from another link.
Things Anita Moorjani learned from her Stage Four Cancer & Ensuing NDE:
1. You attract what you fear.
2. If you’re sick, don’t fight it. Embrace it. Love where you are now. Only when you approach your health challenges from a point of love can you overcome the fear.
3. Sometimes less information is better. When it comes to illness, more information does not necessarily equal more power (too much research can actually add to the fear and symptoms).
4. Through your illness, your body is giving you a message. Work to understand and be with what is.
5. Everything comes from within.
6. Ask yourself, “What brings me joy?” And do more of that.
7. Don’t obsess and make your life about the illness.
8. Love yourself unconditionally.
9. Positive thinking can only help to a certain extent. It’s more about being yourself and loving yourself – regardless of what you are going through.
10. Stop judging yourself.
11. Express yourself fully. Ask yourself: “Am I allowing myself to express who I am? Am I being this person because I want to be accepted, or because it is who I am?”
12. Be centered in your true essence. From the place of pure centeredness, miracles are possible. It’s about being, not doing. When you are in the space of being, miracles are possible.
13. The only thing that limits you is your own beliefs.
14. The best way to get our of a fear state is to do something that brings you into a state of joy. Find something that changes your state completely. Whatever it is – music or art or going out in nature. Do something completely different. Or meditate. If we can be still, we can go into a different reality.
15. Stay totally open. Get into a defused state in which all of the possibilities lie before you and you haven’t locked into any one.
16. Follow your bliss and do what you love. We tend to do what we think we should do, rather than what our heart tells us to do. We don’t do what makes our heart sing.
17. You are your own guru. All your answers are inside you.
18. Nobody is better than (or less than) you. We are all equal.
19. Focus on your feelings more than your thoughts. Make your everyday choices based on what makes you FEEL good, rather than what you THINK you should do or what others think you should do.
20. Don’t let a fear of failing or displeasing others run your life.
21. Realize your own MAGNIFICENCE!
Each of the above points has a deep significance and meaning. It is easier to read but practising is not that easy. Surely all of us have experienced and also accept a few of the above points. We should also incorporate the other points and also ponder on them as much as we can so that we can realise the benefits .
I shall read these beautiful words of Anita every day.
Very thankful to my colleague for recommending this wonderful book.
Its been 6 months since i stopped using Lenangio on the advise of my Oncologist. What a relief that was. Something that i prayed for and was longing for . My Gobulin Serum was normal and MSpike was zero at that time but TLC, Neutrophils were very low and i was beginning to get all infections.
For three months , after stopping Lenangio , my Globulin Serum was in the normal range but for the last three months it has been increasing by .1 every month.
Recently , met my Oncologist with my CBC, LFT and RFT reports and as expected he wanted to start Thalix 50mg. I had this apprehension even before i met my Oncologist. I mentioned the same to my Ayurvedic doctor before i met my Oncologist. My Ayurvedic doctor wanted me to request and take one month time from my Oncologist. He would be giving me another medication which will control those villains in my body.
I expressed the same to my Oncologist and got an extension for one more month. I also told him that my Ayurvedic doctor wanted one month time.
I told my Ayurvedic doctor that i am ready to do anything for stopping Thalix . I also told him that i am ready to go on a fast twice a week. He has now sent me two new medications. One of them to be taken in the form of a decoction.
Keeping my fingers crossed as i have begun the daily ritual of preparing a decoction, from a powder which is a combination several herbs, and consume it before sleeping. The liquid is very very bitter and i have something sweet immediately after gulping the liquid. My ayurvedic doctor tells me that the best way to consume an ayurvedic medication is in the form of a decocotion. Though i would love to pop a pill or capsule any day.
Meanwhile i also came across a lady who is 73 years now and was diagnosed with MM when she was 50yrs. I was curious to know of any tips that she was following and learnt that she meditates a lot.
I have resumed meditation. Have also started going a bit slow at work . I observed that i was getting anxious at home and work. Am now conscious of the speed and intensity of my thoughts.
I am sure that my next results will reflect lower Levels of Globulin serum and i will surprise my Oncologist 🙂 .
My Ayurvedic doctor has now included another herb , Moringa Oleifera , popularly known as Drumstick.I will be using Moringa along with other natural herbs to help me combat Multiple Myeloma.
Drumstick is one of the regular veggies used in South Indian cooking. Frequently used in Sambhar and avial 🙂 . Also made into pickle.Tastes yummy once cooked but has a repulsive odour when raw. The leaves too are used in several recipes.
But not many know the powerful medicinal values of this tree. All parts of the tree including leaves, flowers, fruits, bark, roots, gum have medicinal properties.
There have been several studies to show the effectiveness of Moringa in killing cancer cells.
I received a phone call from the Personal Secretary of my Oncologist who asked me if I was willing to talk to a patient with Multiple Myeloma. The patient was supposedly hesitating to undergo SCT (Stem Cell Transplant).
I didn’t mind talking. In fact i was more than eager to help anyone by sharing my experiences.
I receive a phone call from a guy whose father is the patient.
He asked me a lot of questions.
How I was detected with MM.
How many years since I underwent SCT..
The side effects of chemo.
About losing hair.
Skin turning dark after SCT.
The number of days i spent in the hospital.
How long it would be before the patient can resume normal activities.
Whether i follow any alternative treatment.
Since last one year I have been quite comfortable about sharing my experiences on this blog and other forums.
The guy wanted to meet me personally along with his mom and uncle. For a moment I did feel a little uncomfortable about meeting a patient/caregiver face to face. However, I met them at the hospital and went there after work.
At the cafe in the hospital more questions followed and I learnt more about the condition of the patient. A 61 year old with problem in lungs, liver, backbone and kidneys. My Oncologist recommended SCT to the patient.Surely the doc is confident and I have the confidence in him. The caregivers asked me about alternative treatment and I said I have been using since a year .
I advised them not to think about alternative treatment at this stage. That they should go for SCT and later they can plan for alternative treatments along with Allopathy. They felt the same way.
They did take a second opinion and SCT was advised by the other doctor too..
I cautioned them about following proper diet and to follow the Diet given at the hospital during discharge.That the patient restrict his movements outside home and use a mask for a few months till his immunity improves because one is prone to infections at this stage.
I also informed them that each patient is different and the experiences may not be the same and cannot be compared.I told them to make the patient feel comfortable and assure him that everything will be fine and to be cheerful around him which is a very important part in healing ,that actually works.
After a while they asked me if I was willing to meet the patient. They wanted me to tell their dad about the importance of diet.I saw a lot of visitors waiting to meet their dad .He was an ex politician .The patient did appear weak and was recovering from a recent lung infection. I told him to be strong and take care of his diet.
I told the guy to inform all the visitors that all will be well. That they are in the best Hospital and with the best doctor who is also a cancer crusader.
Here is the write-up that I sent to Dr Nitin, my Ayurvedic doctor. He wanted to share my case with his students and others. It is a chronological summary of my journey with MM.
Age: 46
Gender: Female
Location: Hyderabad
Diagnosis: Diagnosed with Multiple Myeloma in Oct 2011
Jan 2012:Underwent Autologous Stem Cell Transplant (ASCT) at Apollo Hospital, Hyderabad. Started taking Thalix 50mg (Chemo) initially and later increased to 100mg.
Dec 2014:My Plasma Cell count increased to 12%and my Oncologist advised that I should go for another round of Stem cell transplant after three months i.e. in Apr 2015
He also changed my medication to Lenolidamide 10mg (Chemo drug)
I did not want to undergo the second round of SCT. After desperately scouring the Internet I came across a blog by another MM patient , who was living with Smoldering Myeloma and was using Natural supplements to manage her condition successfully for a decade. I then started taking Ayurvedic Medication like Haridra, Ashwagandha, Shigru, Punarnava from ‘Himalaya’ brand . Many other bloggers too recommended Curcumin but because I did not know where to get it I began using Turmeric in the form of Haridra from ‘Himalaya’.
I was experimenting with the above. I also informed my Oncologist that I was taking the above medications and he did not have any objection.
In fact he himself had advised me to take Tinaspora cordifolia ( a herb) , after my transplant for improving my immunity.
In the next three months my blood counts and ESR levels were slowly showing improvement. That was a good sign.
Apr 2015:Was lucky to get introduced to Dr Nitin Kochar , Mumbai by Dr Gayatri ,MM patient from Delhi when I told her that I was using Turmeric. Met her via a social networking group named ‘Yoddhas’. Their website is Yoddhas.com. I Started taking Curcumin and Punarnava and followed diet given by Dr Nitin Kochar along with Lenolidamide. Finally I was in professional hands and it was a great relief.
May 2015: Bone marrow test was cartied out at the end of May 2015 which revealed that MM was in Remission. There was no mention about second time transplant 🙂 . My Oncologist obviously was surprised and happy too.
Oct 2015: Continued taking Curcumin along with Lenolidamide. Bone marrow test was done and my M Spike was zero. Yayyy !!
Feb 2016:My TLC count, neutrophils became very low. The counts were decreasing gradually over the past few months. Started experiencing several infections simultaneously. My Oncologist advised me to stop Lenolidamide. I continued taking Curcumin , Ashwagandha and other herbs and followed the diet as per Dr Nitin’s advise.
May 2016: Bone marrow test revealed MM in remission. I have not been taking Lenolidamide for the last 3 months. No more Allopathy.
Currently taking Curcumin , Ashwagandha, Nimbodi, Bavchi during the last 3 months. Have been fasting once a week and taking diet as per Dr Nitins advice.
My Oncologist told me to take a break from medication for another 3 months.
Yayyyy !!
Hopefully this will be a permanent break 🙂
My experience with Fasting :I had never fasted all my life. I was nervous initially. I currently fast once a week. I am not supposed to eat anything till dinner time. I can take tea/coffee two or three times during the day. Only if my stomach rumbles and feel weak I am permitted to eat a fruit. I can manage with three servings of fruits . Only Luke warm water to be taken throughout the day. For dinner I am allowed to take vegetable soup and kichdi (single pot meal cooked with lentils, rice and veggies) . I eagerly look forward to eat the warm bowl of kichdi in the evening and feel grateful for the food. It is a great feeling . I am enjoying my days of fasting. Makes the body feel light. Makes the food during the rest of the days taste great.
I also did my own research on the Internet on the effect of fasting and read that Fasting makes the cells go into repair mode. This period of rest heals the cells and tissues in the body , which is very important for a healthy body. I am convinced and surely we can give up food for one day in a week for improving our health. The side effect of Fasting is better health 🙂
On other days too , I follow the Diet given by Dr Nitin. I have reduced consumption of Sugar, Maida , Milk , Wheat , tur dal and have included more of millets , Moong dal , chana dal , veggies , nuts in my diet .
Feeling good , happy and quite comfortable now. Wish to share my miracle with as many as I can so they too can benefit from Ayurveda , Fasting and proper diet.
I feel happy sharing details of my experiences in this blog through my other posts.
My Serum Protein Electrophoresis and Beta 2 microglobulin serum results are out.
‘No M band is seen’ in the Electrophoresis test . Yayyy … On seeing these words I immediately say a little prayer thanking Almighty.
The Kappa parameter is on the higher side while the Kappa Lambda ratio is in the normal range.Not to worry as I am confident that Kappa too will be normal soon.
My Oncologist expressed his happiness and we were all ears to listen to what he had to say next.
Said I can take a break from Lenolidamide for another three months. Yayy .
It’s been 3 months since I was told to stop lenolidamide and I need not take it for another three months. I was patiently waiting for exactly this kind of news and had this wish for a long time. Hopefully I will never ever have to take it again.
Every month for the last 16 months I was getting the CBC , LFT AND RFT tests and meeting my Ocologist with the reports. He was closely monitoring me since the relapse in Dec 14 and i was advised to go for a second Stem cell transplant after 3 months. However there was no need to go for it as my M spike was zero in the subsequent tests after the relapse.
This 3 months break is such great news and a great relief.
I feel like screaming and shouting and telling the whole world.
My confidence and belief that my condition can be reversed has come true and quite quickly too.
Informed Dr Nitin , my Ayurvedic doctor , about the results and he too was glad and wanted me to do a writeup on my experience and progress with Ayurvedic medication and Fasting so he can share with his students and others who can benefit.
